In 2005 I went to a Gastro Doc with complaints of stomach pain and
diarrhea . I was told that nothing was wrong and to eat better. My symptoms were still bad and after a few more doctor visits I was sent for a colonoscopy and It showed I had inflamation and recommended clinical correlation. I was told by the same Gastro Doc that nothing was wrong and again try to eat better. One year later he gave me another colonoscopy and the results were the same but this time he stated I had Crohn's disease. He prescribed Pentassa(8 pills per day) and told me that would help. Pentassa didn't seem to help and I still was in terrible pain and discomfort. He then put me on a steroid Endocort (sp) and told me that should help. I stayed on the steroid for about 6 weeks and I still never felt any improvement. The Doctor insisted that I had mild Crohns and if I wasn't happy with him I should go to Mount Sinai in NYC as they have a great Crohns program there. I reside in Long Island and was fearful of traveling into NYC as people with this illness try to avoid traveling farther than they have to. Well to contradict my last statement I decided I would take my wife and daughter to Cape May NJ for a short Vacation. Once there I became very ill and could not leave my hotel room for 3 days. I ate nothing and couldn't wait to get home. On the drive home we stopped at Wildwood NJ because it had a boardwalk and rides and I sat across from the bathroom while my wife took my daughter on the rides. While sitting on the bench I saw my Gastro DR and told him how sick i was and he looked at me and stated "Im on vacation and you're on vacation see you" He just walked away. I could not believe the coincidence of seeing him there and I was amazed at his answer that he gave me when he asked how I was feeling. At that point I decided to leave him and when I came home I saw a new Gastro Dr and he ordered a cat scan immediately and he said after seeing the results that my Crohns was severe not mild. He then put me on Prednesone,6MP and Humira but nothing helped and then I went to the ER and tey found I had a stricture and had to do major surgery taking out part of my Colon,Ceecum and small intestine. They could not do the surgery Laposcopic and I spent an entire month in the Hospital. My new Gastro has put me on 6 MP as a prevention from this from happening again. The Colon Surgeon had told me that she couldn't believe how bad my first gastro Doc was and that my intestine looked like a tissue that went through a washing machine left in a pants pocket. Totally rotted through. Thank God I am recovering now after suffering many years when I believe I didn't have to. I learned that finding the right MD is so crucial in fighting this horrific disease.
Just posting to get anyone eles thoughts or similar nightmare stories. As bad as the surgery was it turned out to be the best thing that happened to me as living in pain was torture. I also believe that if my 1st MD was on top of things then maybe I wouldn't need surgery or would of had a less invasive one at the very least.