It's been a while, but I've still been dealing with Pyoderma Gangrenosum ulcer that won't give up and go away. I've been in a sure enough fight with my body now for over 9 weeks, and you think it would give up and say uncle. I decided to go ahead with the IVIG therapy( Intervenous Immunoglobulin). After the Derm. dr. talked to her professor at John Hopkins and it is what he suggested the next course of action should be. I had the infusions on Thursday (12 hrs), Friday (8 hrs), and Saturday (9 hrs). I had to take Benadryl and Tylenol before the procedure and am still on 70 mg Prednisone. I was finally able to get off the IV steroids 2 weeks ago and have been on 80 for a week and then 70 for a week. Today is the next hurdle in that I go down to 60 today, which I have not been able to get past without the PG going nuts. The pain has gotten better and now only have to use pain meds about every other day. The progression is halted, but we can't get the ulcer or margins to give in. I'm hopeful that the IVIG will allow my body to get past the 60 mg hump. My face and neck are going to explode if I don't get off this high dose of steroids. It's getting past the being subconsiousness of moon face, buffalo hump, and triple chin. My pancreas is starting to get wonky and I am having trouble regulating my sugar. I've had serious problems with my pancreas in the past, and can't afford to go there. I'm off the IV antibiotics, but have to leave the PICC line in until we see how IVIG is affecting me. I;ll let ya'll know how it does!
love to all,
diagnosed CD '03 after suffering for 10 yrs.
re-section surgery '05, Chronic Pancreas problems, joint and muscle issues (from Remicade), diagnosed March '09 pyoderma gangrenosum
meds been on-Asacol, Pentasa, Lialda, Remicade, Humira, 6-MP, Methotrexate, Rowasa, Prednisone, too many pain meds to list
Currently on-Cimzia, Cymbalta, Reglan, Pamine Forte, Methotrexate, Folic Acid, Probiotics, Phenergan, Omeperazole, and Klonopin(RLS) (IV Vancomycin, Fortaz, Solumedrol, and Lasix)