Everyones Different

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Feb 2008
Total Posts : 314
   Posted 5/13/2009 9:49 AM (GMT -7)   
This is one of those subjects where it helps to knows others thoughts and sometimes 'reactions' to this combo or even individually. But ultimatly its you and your body, has nothing to do with others responses to the drugs. Now me I take both and its the only time I've seen less hospital stays and ER visits. Now in me The metho seems to very well control the disease in my Small bowell, where as the humira overall helps me entirely. But thats me, just like the person responding before me was for THEM. This dicision is yours, but by the way, we go to drs because THEIR the experts, no one here is an expert, we just have experiences, some a lot more then others, and some have no experience no matter how long they've had the illness.
You need to talk to your dr and find out his reasoning and thoughts on your concerns. a lot of times we find these concerns are unfounded.
Sorry I mistakenly made a new post and wanted this as a reply on the person posting about humira AND methotrexate combined. Sorry Guys.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 5/13/2009 10:42 AM (GMT -7)   
I'm not sure I totally agree with your statement about the docs being the experts and we're not, we just have experinaces...I think many of us take it upon ourselves to try and educate ourselves and with that alone we know just as much as the medical field if not more, many docs have no clue about probiotics for example and how they can be a huge benefit for us. The medical field knows what they've read from books( and maybe even from scopes and other tests they perform), books (and tests) that have been written based on patients experiances so the way I see it is experiance is knowledge. Not to mention, some of us have had the disease longer than our GI's have been GI's.

My bum is broken....there's a big crack down the middle of it! LOL :)

Veteran Member

Date Joined Dec 2005
Total Posts : 637
   Posted 5/13/2009 12:27 PM (GMT -7)   
I agree with PB4. I tend to think of doctors as someone who helps.

I like to think of it as if we are playing a football game. My doctor is the coach, and I am the quarterback. My coach tells me what plays to run, but he is not out there on the field.

Sometimes if opportunity presents itself, then I think it is best to take a chance on that opportunity. I will ignore what my doctor aka the coach is saying, and run the ball in for a touchdown myself. If I get tackled, and hurt, well that is my fault.

Sometimes it is hard to talk to doctors. They are used to dealing with patients that don't take an active role in their health care, you guys know what I mean. You have friends that don't know their own veins from arteries.

CD dx @ 13 (1987)
Prednisone 10mg every other day
Phenergen PRN
Celexa 20mg day
Zantac 300 - Twice Day
Pain Meds

Regular Member

Date Joined Jul 2004
Total Posts : 422
   Posted 5/13/2009 1:59 PM (GMT -7)   
I agree with pb4, too. My GI knew NOTHING helpful about Probiotics. "Sure, you can take them if you want." Ok...any suggestions as to what kind? "No...any will do." Ok.......

Also, when my ankles were swollen so bad I couldn't walk for 2 weeks, my GI had "no idea" why that would be happening. His nurse was worried about it being from a blood clot so my GI told me to take Asprin for 3 days, saying it wouldn't bother my Crohn's. So I did some research and learned about Crohn's Arthritis and mentioned it to my GI. He said, "Oh yeah, well the swelling ankles could be that." I requested to see a Rheumatologist who immediately diagnosed my swelling ankles as Crohn's Arthritis. Shouldn't my GI have known about Crohn's Arthritis???

It's little things like that which make me wonder if I need a new GI. But doctors don't know it ALL. A new GI isn't going to know all about Crohn's. Crohn's specialists don't know all about it. With an illness like this, doctors help us with knowledge but we can't rely on them for EVERYTHING. We have to do our own research to learn about our own bodies and our own illness.
Diagnosed in October, 2004 at age 32 (misdiagnosed with IBS in 2002)
Current Rx's: Colazal (generic), Omeprazole, Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Cranberry pills
Secondary conditions: swelling ankles, extreme fatigue, mouth ulcers, joint pain
Previous/occasional Rx's: Prednisone, Flagyl, Levaquin, Xifaxan, Carafate
4/7/09: Gall bladder removal laproscopic surgery (gall stones)

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 5/13/2009 2:43 PM (GMT -7)   
Wow kittkatt, you know you've got a bad GI when he tells you (or anyone with IBD) to take aspirin...any good GI will tell their patients to avoid it cuz it can cause bleeding in the GI tract for those with an IBD.

My bum is broken....there's a big crack down the middle of it! LOL :)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 16, 2017 12:06 PM (GMT -7)
There are a total of 2,906,163 posts in 318,925 threads.
View Active Threads

Who's Online
This forum has 158266 registered members. Please welcome our newest member, GeorgeCastanza.
303 Guest(s), 5 Registered Member(s) are currently online.  Details
Rick1310, Aset28, Maverick6981, Mark FW, PA_grandma