Pain medications

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Regular Member

Date Joined Oct 2007
Total Posts : 39
   Posted 5/13/2009 8:46 PM (GMT -7)   
Hi everyone, I am just wondering how many of you guys are on pain meds and if you have trouble getting them from your GI or general practitioner? I am always given like a 60 pill container of hydrocodone, and then when its all gone I have to go back and explain that I am still in pain and that I need some more. The docs think that I am a drug addict now or something, because I need the pain pills. They were the ones that gave it to me in the first place, so if they have a problem with the narcotics , I think that they should find me a non narcotic option if that exists. The GP is reluctant to prescribe me anything and wants me to talk to my GI doc. The GI doc wants me to talk to my GP about it. Just a complicated nightmare , just like everything else with this disease. My pain is from the gut from the crohns, I also have to bulged discs in my lower back that happened for no known reason. There is also pain from the Crohns arthritis. I just don't know what to do about the pain and think that there should be an easier way to get the pain meds if you need them. There also should be non narcotic options , but I am not aware of any. Please if you know of any let me know. Thanks!

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 5/14/2009 2:50 AM (GMT -7)   
You need to get a referral to a pain clinic. They should be able to give you something that will handle your pain in a more effective manner. Unlike the GI who wants to cure your CD, so he doesn't want to mask the symptoms, a pain management doctor just wants to help you manage your pain level so that you can have a normal life.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Mar 2005
Total Posts : 357
   Posted 5/14/2009 6:31 AM (GMT -7)   
I take Percoset.. I started them when I was in the hospital in January and have found that they work wonderfully.. the only thing is I hate asking my doctor for them! She will only give me a prescription for 20 at a time, so I feel like I'm asking all the time.
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/14/2009 6:34 AM (GMT -7)   
I get my pain meds from my family doc. I take 1/2 tab of Percoset 3-4 times a day, I would be miserable without them as I also have fibromyalgia and bad arthritis. I agree with Zanne, if you can't even get them from your family doc, the pain mgmt docs might be a better help for you.

Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Aug 2004
Total Posts : 102
   Posted 5/14/2009 7:56 AM (GMT -7)   
I had the same problem with my primary care doctor, she said people with Crohn's don't have pain but would reluctantly give me 30 vicodin every 30 days. She also said it's a hassle because when I call in for a refill, she has to look at my chart every 30 days. I didn't know I was such a burden to her! Anyway, I went to a pain management doctor at the suggestion of everyone here & it was great. The doctor was very nice, she said she had a lot of Crohn's patients & was the first doctor I've ever had to acknowledge that not only does having Crohns itself cause anxiety but having constant pain makes it worse. She asked me how much medicine I thought I needed, wrote me a script for that amount & also gave me a script for a muscle relaxer for nighttime to reduce anxiety & help me sleep. It was such a relief to have someone care & understand.

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 5/14/2009 12:44 PM (GMT -7)   
I haven't bothered to ask my GIs. I go to a regular doc down the street and get any of that kind of med from them. I just got Oxycodone (percoset) after my seton placement Monday, but the Vicodin still work better for me. Though, I have developed a bit of tolerance and usually take 1.5 now when I need them.
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone, Tysabri
--Prochymal in Phase III study (can't wait til it's approved!)
--currently taking methylprednisolone 40mg-taper.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl

tall girl
Regular Member

Date Joined Apr 2009
Total Posts : 68
   Posted 5/14/2009 1:48 PM (GMT -7)   
My GI just put me on tramadol. I was on vicodin but my GI says that it actually makes your immune system kick in even harder which is obviously bad for us. The tramadol is a synthetic med close to codine. It is not an opiate so chances of adiction are much lower and it also may help with depression. So far so good. It seems to work better if I take it before the pain starts. It doesn't give me a headache like vicodin does. Overall so far I am happy with it. I am taking 2 to 3 50mg pills a day. (sometimes less sometimes more) Also, since it's not a narcotic my doc must feel more comfortable giving me refills. He prescribed a 30 day supply with 3 refills. Its worth looking into.
25/ Female DXed Crohn's 1/09
Many diet restictions

Entecort, Tramadol (for pain), Zantac, Fish Oil, Probiotics
just stopped Pentasa after 1 month

Still confused and sometimes angry/frustrated

However I am learning to laugh at all this more often

Texan with Crohn's
Regular Member

Date Joined Dec 2007
Total Posts : 362
   Posted 5/15/2009 3:18 AM (GMT -7)   
Yup. Live in pain - P (pain) N (nausea) D (you get the picture here), all day every day. Don't even bother with GI doctors - defensive medicine. My PCP referred me to a pain management doctor who is wonderful and really cares.

Hope you get to feeling better or find someone who can assist you in managing the pain. CD really stinks!

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 5/15/2009 6:11 PM (GMT -7)   
Yup...lifegiver my PM(Pain Management) is...PM's keep up to date on the latest and greatest in pain relief...they also know how to fill out all the paperwork so that they DON'T get in trouble(of course, there are some bad guys out there, but that is true of any specialty)...they may suggest things that might help a whole lot and would not have occurred to your GI or PCP...the Chronic Pain on this portion of the site is wonderful too...
"The earth laughs in flowers"

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