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Regular Member

Date Joined Jan 2005
Total Posts : 140
   Posted 5/15/2009 11:14 PM (GMT -7)   
I went. I had fun. I saw a lot of bathrooms. I even took pictures of bathrooms!

Thanks for the Imodium suggestion. It really came in handy and they taste a lot better than they used to. It'll be a while before I go on holiday with active Crohn's again, but I'm glad I did it and made it through with a smile. It also got me thinking about what I put up with every day and quite frankly it's unacceptable.

I'm going to talk to my doctor (who knows, maybe I can actually get an appointment - what a concept) and if he can't promise me I'll be better for my wedding at the end of the summer then I don't see the point in going through with it. Sure, I'll spend half my holiday in a washroom, but not my wedding day.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/16/2009 8:22 AM (GMT -7)   
Glad you had a good time on your trip. I knew you would:)

Definetly get in and see the doc, I am sure they can get you feeling better soon. Big Hugs!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Feb 2009
Total Posts : 128
   Posted 5/16/2009 8:32 AM (GMT -7)   
Trips, trips. I'm leaving on a business trip tomorrow for four days (well, five really) with this terrible fistula. And yes, my appointment is AFTER the trip. C'est la vie.

Good luck with the wedding, it was the happiest day of my life!!!
I am a pre-30yr. old who has been diagnosed with Crohn's for 14 years.  Symptoms change from cramping and weight loss to severe anemia with fatigue and diarrhea. 
I'm DONE (D-O-N-E, DONE!!!) with immuno-suppressants.  Tremble, yee Pharmacuetical companies, for you will not withstand the aggressive onslaught of our healing!
new prescription from natural doc,
3.5 grams Chlorella daily.
4.5 mg Low Dose Naltrexone nightly. 

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 5/16/2009 10:19 AM (GMT -7)   
I really, really admire that you did this...and so glad to hear it was fun!!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 5/16/2009 10:44 AM (GMT -7)   
I'm leaving in about 10 days on a short vacation. Normally I don't worry cause its just my family I inconvenience, but this time, my husband and I are traveling with 2 other couples. Lucky for me, one of the other ladies is pregnant so I think she will be all over lots of bathroom stops. But still, I am a little worried. Still, they have known me for years, so I think they will take it in stride and things will go OK, as long as I don't end up in the hospital or something! Fingers crossed.

Glad to hear your trip went well, and I hope they can get you feeling right as rain by your wedding!!!!

PS, we should all buy stock in Immodium, now that is a money maker for us!!!

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 5/16/2009 7:36 PM (GMT -7)   
I was flaring before my wedding but not as bad as you. I was assured I would be "fine" and just "forget" my crohns on my wedding day. I thought everyone was nuts. But, I got a little sick while getting my hair done, popped immodium, and ending up being FINE the whole day and night. I was at about 70% over the honeymoon. Got sick kayaking and had to use a boat toilet (not fun but at least it was there). Had to limit some of our activities to stay near a bathroom. But, the most important thing was the people I thought were crazy were right, I forgot I had crohns once my wedding started.

Also, have you considered an anti-anxiety med to take the edge off?
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 

Regular Member

Date Joined Jan 2005
Total Posts : 140
   Posted 5/17/2009 6:55 AM (GMT -7)   
I was just thinking that this morning, what if I just popped some Imodium that day? It might work. And I like the anti-anxiety pill idea too. It's just a little depressing that I have to wear a pad, even on my wedding day, in case I might have an accident. While on vacation I was with my sister and we could joke about all the different bathrooms I saw, the pictures I took of really cool hand dryers and the Queen of England's bathroom at Buckingham Palace lol And when I did have an accident I just picked up and moved on. But in a white dress, in front of 100 people... why would I do that to myself? BREATHE! : )

I do have a travelling tip for the person who said they were going away with another 2 couples. Just be yourself. Otherwise you're just going to stress and make it worse. If you've gotta go, go. And if you're not feeling up to a tour or dinner or whatever, just say so. If they're good people, which I'm sure they are, they'll understand. Get as much out of your trip as you can and just deal with the Crohn's as best you can.

Thanks everyone for your support!
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