I am wanting to try remicade.
Seeing a new g.i. next week.
I have heard the stuff is great, it's a night and day difference in some patients, but it just does not work for all. I at least want to try that out for myself.
I have been on Imuran, it does work, and it does help ME. I am not on it now, I too had gall bladder surgery(last month), and decided to stop using Imuran, and try to prevent the risk of infection from surgery.
There was some nausea at first from Imuran, and there is some fatigue from it. It seems to help if you can put at least a couple weeks inbetween your doses. I mean if you start out at 50mg, or one tablet a day, stay on that for a couple weeks, then increase to 100mg, and the fatigue is not as bad.
If you just started out on 100mg, it will be quite hard, you will be sleeping alot, and have little to no energy. Of course talk to your doctor first. It can take several months before you see any real results from Imuran, so you will need an attitude where you don't give up on it for at least that amount of time. For me, personally, I can tell a difference from it in a few days, but am very sensitive to my body.
Remicade I have no experience with, but have been wanting to try it for years now. I have been following it for some time too. It has some side affects, such as increased infections, colds, bugs, but I tend to think, in my humble opinion, how you respond to imuran(immune system suppression) is an indication of how you may respond to remicade.
Most people will get to where remicade does not work for them, or it doesn't work as well. The good news is that this can take years, and can sometimes give them years of treatment. Their body will build up antibodies to the mouse protein in remicade. There is hope though, Humira is usually the next step. It's a med like remicade, only it's made from human protein. Also if you watch tv, there are all kinds of commercials out now for new meds like humira, incase it stops working like remicade did, you move to the next one.
Orencia is one of these new meds; I see alot of commercials lately about
it. It also is claiming to pay your co-pay on this med for six months(8 infusions), and that is kinda nice. I am not sure if this med has been approved or is used in CD patients, but you really should be far(years away) from worrying about
that step at this point.
P.S. These meds can be VERY expensive, several thousand dollars per infusion, and that is really the bad news with them. No doubt your doc will do all the work needed to make sure they get paid for the infusions, but double check on the co pays, or your part, first.
Welcome to the forums
CD dx @ 13 (1987)
Prednisone 20mg every other day
Zantac 150 - Twice Day