Thanks all for the replies.
I know I have had caecum, appendix and part of ileum removed. I have seen the same figures as Rider Fan - we have an average of 20ft small bowel and 6ft large bowel (although varies) but common agreement that less than 6ft usually means 'short bowel' although also says gut can adapt quite well over time. I just can't believe that nearly 14 ft of bowel has been removed over 2 operations without any doctor flagging up major implications. I'm hoping there has been some error as you suggest but not seeing GI consultant until 10th June. It's really hard to keep calm around all this stuff especially when I'm getting different pains and obviously thinking the worst. It's exhausting!
Thanks for info about B12 - I didn't know it could be stored for a while so I have time to get it tested out anyway.
I'm definitely not going to start maintenance meds etc until I have the full facts about my situation and best guess on prognosis - I seem to have the stricture-type CD that people talk about.
Oh .....if I read one more article that says I can lead a 'normal life' I will scream so everyone can hear................my current normal is not what I want!!!! Ooops - rant creeping in there but still valid xx