Tom, you have been given some really sound advice by our wonderfully insightful members. I would really like you think about
the future in some other ways. You worry alot about
your daughter's future, how this disease will impact her life. How involved is your daughter in the discussions about
treatment options? She's 15 or 16 years old now, right? In a couple years, she will be of legal age and you will only be able to be involved in these decisions if she allows you to be. I hope the engery you put into researching options is equal to the energy you give in getting her involved in her health care. I think it's important that your daughter understand and be involved in her treatment so she can make good decisions later in life and rely on her father for help during the rough patches.
The reason I say this is because of my friend. She was very ill as a teenager and her mother hovered, worried, and dictated her life and treatment with her illness at the forefront. She eventually got well, went to college, married and had children. She developed breast cancer last year at age 35. She has not told her parents that she had cancer, had a masectomy, and radiation. She was afraid that once her mother learned of her cancer that her mother would smother her as she did when she was a teen. As a mother, I would be horrified to learn that my adult child had to face such a terrifying time without me to be there for support.
I am not implying that this is what will happen with your daughter because my friend's situation is a very extreme example. However, as others have told you, your anxieties can easily be picked up by your daughter. It's a fine line we have to walk during the teen years.
You are not a loon. And some of your posts make for some really wonderful discussions about
the impact of chronic disease on one's life. I am so impressed with our members thoughtful and insightful postings. I think that is one reason we have such a great community here.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.