Haven't posted in a while. While reflecting on this disease of late. I tried to get an idea of what would be the biggest concern about the future with this disease. I may have made the odd similar post in the past/not quite sure.
THe thing that seems the most worrisome for me is, the liklihood of the disease continuing on a pattern of progression, complications and permanent damage. I worry for my daughter that she will not have any quality of life well into her adult years. I really wish I could get off of that train of thought.
I have been told here (many a time actually), that most here present the most severe cases, and that may not be typical for most afflicted.
Is there others that have the feeling/outlook that I have? I suppose it boils down to fear of uncertainty. I find that very tough to cope with.
Good Evening Monte that is a real easy question to answer I think about
it everyday of my life,were is this disease going to take me now how much more can my body handle,looking in the future is down right scary how ever that is were we are all heading, anyway there is no changing that but the way I look at it is this I have been sick now for 19 years or so and they were really bad sometimes I wonder how I'm still here but my gram always said dear if your sick alot as a child when you get older you will be fit as afiddle and I'm living on every word with a full heart I know that sounds corny but we can't let this disease scare us that much that we are afraid to live to our golden years travel to exotic places swim in blue waters and just live life people without disease live life the same as we do 1 day at a time.Jenn