Soooo. . . . my new doctor has requested another colonoscopy and upper endoscopy :( next Friday the 29th. I just had one done in October and it didnt go so well. I ended up in the hospital for 3 days with a perferated bowel from the air they push up there. I just recently started seeing him. He started me on Humira on April 3 and I havent done well on it. We are proceeding with Humira for the next month and will wait for the bone density scan, hip xray, and the colonscopy and then I will have an appointment with him to see the results. He wanted to do these procedures again for himself to make sure that nothing has been missed since the passed 8 yrs none of the chrons drugs have worked for me. He wants to test me for celiac disease. After all of these yrs and asking them to test me for it they still havent. :(. So after all of this my doc wants me to try Remicade. If it doesnt work then he suggested surgery. Im so scared of surgery.
What really bothers me about this disease and everything that has happened is that I want to have another baby and they are telling me no. They want me to be in remission when I get pregnant. To me that means I will never ever be able to have another baby. In the past 8 yrs I havent even been close to remission. I have been sick since I was 4 and wasnt diagnosed until I was 15. I'm ready to give up on all doctors again. I went through a 4 yr stint where I didnt go see a single doctor. I did better then than I am doing at the moment.
If I decide surgery he gave me the option for a colectomy which my regular doctor says its possible to get pregnant with the bag. She said she just delivered for a lady who had a bag while she was pregnant and that it went well.
I almost want the colonoscopy to come back with celiac because I can go drug free and put more effort into my diet knowing thats all it is. well anyways my brain is so foggy that this post took me over a half hour to right. Lol.
Thanks for listening :)
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)