Blossom .1st thing, my doctor said that it was 3 months to see if it would work. I still have 2 shots left so a months worth. Since being on humira I have been feeling worse and gaining weight none the less. I have had a lot of side effects from it and I dont like how I feel on it. Fatigue mainly. My doctor wants to do another colonoscopy and an upper endoscopy himself to see if my previous doctors have missed anything. I requested the celiac test to be sure. I have also been told by my doc that the blood test isnt always right. I can be celiac and still have the blood test come back negative. Which in my case the blood draw came back negative. There have been many people on this site as well that have said this.
Nanners . I would love to wait as long as possible without having surgery, but I am on one of the last meds for crohns and seem to have no other choice. So If I choose surgery I have the options for a colectomy, ileostomy or colostomy. I would rather start out with the colostomy bag because then they can put me back together rather than loosing part of myself and diarhea for life :(. Surgery also depends on what the results are from my colonscopy. And just thinking about this now I am kind of scared to get the colonscopy and upper endoscopy because they are putting me under and I would hate to wake up with something that wasnt my choice. If you know what I mean. I dont particularly trust doctors in any degree. One reason I hesitate on surgery is that in reality it only last about 10 months before crohns start appearing again. Which in turns means more surgeries. Its a never ending vicious cycle. And yes I would like a better quality of life, but Im not sure that surgery is that right path for me yet.
Age:22/6"1'/146lb - Diagnosed: 2001 @ age 15 now 22
First time mom as of March 8th 2008
Past drugs: Pentasa, Flagyl, Budesonide, Prednisone, tons of Antibiotics, Didrocal, 6mp
Past herbal remedies and vitamins:Probiotics, Omega 3&6, Prenatal vitamins, B12, Calcium, iron, vit C, vit D, vit E, Selenium, mineral drops
Current drugs: Valtrex, Methotrexate as of October 2008
Problems:Fissure and Tags on rectum, blood clots, Chronic UTI's, Osteopenia, Ulcers in my decending Colon
No surgeries....yet. Gone through 5 G.I.'s found a 6th G.I. crossing my fingers
Procedures: 4 colonoscopies, 1 upper endoscopy, 2 barium swallows, 1 biopsy of the fissure and tag (chron's affected)