WOW! I am so glad I found this site!! My 10 year old son was just diagnosed with crohn's. He has had symptoms since Sept, (diagnosed UC in Dec, diagnosis changed after 2nd colonoscopy and 4 day hospital stay), and has had a horrible time with school and school attendance, ecspecially in the mornings. He is always saying he doesn't feel well in the mornings and never wanted to go to school until at least 10 am. He has the most pain in the mornings and later at night around bedtime. THe school argued with me and said it is probably just nerves and I should just send him anyway...saying he will be fine and that if he needs to lay down, he can lay down in the nurses office. But he's 10, when he isnt feeling well, he still just wants his Mommy or to lay down in his own bed, use his own toilet.
currently taking pentasa 2@250mg 2x daily, 30 mg prednisone, 20mg omeprazole 2x a day and 1/2 of 1,000mg canasa suppository nightly
Yeah, besides the cramping and bathroom trips, a lot of crohnies (myself included) just don't feel well in the mornings. It's like perpetual Morning Sickness. Nausea, stiffness, soreness, fatigue. Just all around feeling yucky.
Just trying to be a "Regular Member".
Entocort 9 mg/day, Prednisone 20 mg/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. Increased Azasan to 150 mg 10/15/08. Discontinued Humira 11/03/08 after extreme fatigue and moderate muscle aches. Started Cimzia 12/4/08. Down to 5 mg/day of Pred now, and will continue to taper until completely off as long as the other meds keep me off the porcelain.
I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.