Bammer, if you want to try it, really read up on it and make sure you're pretty much ready to manage yourself on it because your doctor pretty much knows less than you do. There is a great study as someone mentioned here by Jill Smith at Penn State for Crohn's that was published in 07 i believe in the Journal of Gastroenterology; if you want LDN you need to educate yourself and be armed with your reasons to get the doc to give it to you.
There is loads of patient related data online. So you can start at the link above and peruse all the information. Decide if it's right for you.
Me? I've had a disease like Tuberculosis (Brucellosis) so my ability to take the immunosupressives is not an option -- at least in my head, so the upside potential for LDN is high -- 87% of the patients in the Penn state study (a small population) went into remission.
The downside is trying to find a dose that lets me sleep correctly (and if you have patience this is pretty easy, just slowly work up on the dose -- read the Multiple Sclorosis literature) -- and having my GI ridicule me. Ill be the one laughing at her at my next colonoscopy/endoscopy (hopefully), so I'm cool with that. The greatest downside I suppose is that it is a waste of time and does not work. But that sure beats some of the side effects I've already gone thru. Because of my allergy to pentasa, I'm in the midst of the worst flare in my life. LDN will not ever do that.
The cost is low. It has to be made at a reputable compounding pharmacy, which I luckily have nearby, but there is a great list of places to get it. It costs me 32 bucks a month.
I think the most important thing is to be prepared and desiring to educate yourself. I probably have put 20 hours of reading into this before moving ahead. Others certainly less, but I'm an experienced researcher and wanted to be double plus sure that I was not going to harm myself in any way.
Oh! And if you start to wade around in the LDN community/links you'll find printable packets of stuff to take to your doc....
All the best.
strictures, crohn's, adhesions, endo. fighting Pyoderma G.
Trying LDN 4.5mg nightly ~ because I'm allergic to pentasa and 5ASA's I'm taking Boswellia Serrata. SCD yogurt. Olive leaf liquid extract for candida, using silver sulfadiazine (new to me) on PG. B-12 shots. Juicing veggies!
Post Edited (janicea) : 6/4/2009 5:40:12 AM (GMT-6)