I recently signed up on the forums when I came across this site while researching PG. I don't see many posts on PG, I was just wondering if there is many people out there with this disease? If you do have this disease, how do you deal with working and controlling the pain, or can you not work while having a flare up? How long have you had this disease? Do you have another underlying disease? (most people with PG also have an underlying disease that is associated with PG, example: Crohns, IBS, UC) I just got diagnosed with PG 2 weeks ago but it took months to get it diagnosed. The pain that is linked to PG is horrible. Im currently on Fentanyl (pain patches) and Hydromorphone. Along with PG my wounds (which I have 3, 2 on my lower left leg and 1 on my lower right leg) are infected with MRSA (staph infections) so Iam also on antibiotics. I also go to a wound clinic weekly and they wrap both my legs to keep down swelling to help the healing process.
Four days ago I started Prednisone(steroids) a medication known to help PG patients heal. The side effects that I have read about
this medication is terrible. However, my dermatologist says that I will be short term so I shouldnt have to deal with the terrible side effects. She is going to put me on another medication after I get finished with the Prednisone, I cant remember off the top of my head what that medication was called but I will keep everyone updated once I find out.
Last week I got a colonoscopy to test for Crohns and UC, the GI doctor says that from what he saw he didnt think I had either one, but would find out more with the biopsy report that he would get back this week sometime.
If you have PG ...please tell me your story, let me know how the healing went, if you ever did heal, do you have flare ups often? etc. I have had my wounds since Aug 08, Im tired dealing with this
disease has been so depressing for me. I keep trying to stay positive but its hard after almost a year and not getting any results. I know I have only been told for 2 wks that I have PG and it may take time to get progress going on the healing, but its hard to stay positive when its been so long dealing with the pain :( and knowing Ive been off work for 11 weeks and I cant afford to lose my job, Im a single mother and my leave of absense runs out next Tues.
Thanks for listening guys!
Post Edited By Moderator (Ides) : 6/5/2009 5:54:11 PM (GMT-6)