Im not sure to be honest with you, I would guess that the first step is to talk to PCP or even the Nurse Practioner would do, and then just go from there.
Today is my 3rd day back to work, and its not going to well today. Im in alot of pain, and feeling very very fatigued. I have caught myself almost falling alseep at my desk. (and yes Im at work right now posting on this forum) lol!
Im out of steroids and have called my dermatologist for the past 2 days trying to get a refill on meds and Im getting no response..pretty annoying to say the least. I left another message letting them know Im currently out of meds, and I hope they actually call me today ...geez.
I hope I get through this day ok, I feel as though I could lay down and sleep for hours and hours. Oh yeah another thing, I have tons of symptons of Chrons or UC..but my GI says he doesnt think I have either...the one thing that I never had as far as symptons was blood in my stool...however today that has all changed, this morning I had that sympton, not alot but I did notice some. *sigh* I have an appointment on the 23rd with my GI. so I will tell hima bout that and see what he says. I just feel like most doctors blow me off, they seem to drop the ball alot on me :(
Wow during this post my Dermatologist office called me, and she is making me wait until Monday to get any more steroids, I believe she is gonna put me on Cyclosporine, BUT ..she refuses to get me started and is making me wait until Monday, which is really stupid ..I hate that I have nothing that is currently helping my wounds to shrink or close :( so lets see, I will go 5 days w/out any meds that will be helping my PG ...this means my wounds may just be back where they were by the time I go to see her on Monday. I may just flip out on Monday in her office, Im getting burned out on having doctors who have no bedside manners and no concern for their patients well being. Seriously this is getting old and fast. I may fire this Dermatologist...Im sick of dealing with doctors who dont give a darn about their patients. Her excuse on why she isnt going to go ahead and prescrib Cyclosporine is because she wanted to talk to the infectious disease specialist that I saw on Tuesday...well I could easily tell her what he said, and tell her what a moron he was...that was the guy who wouldnt give me IV antibiotics for my MRSA that I have in my wounds and wants me to stay on oral meds until my wounds are completely healed (which could be forever)...Why she has to talk to him is beyond me ..but I have fired him ...lol and she is close to being fired too...
Enough with the negitive stuff...I apologize, but this entire situation is really ticking me off :(
Thanks again for listening and letting me vent my frustations :)
Diagnosed with Pyoderma Gangrenosum May 09
I had the blues because I had no shoes until upon the street, I met a man who had no feet. ~Ancient Persian
Post Edited (Kirei) : 6/11/2009 1:02:21 PM (GMT-6)