Crohn's metamorphosis

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Regular Member

Date Joined Aug 2008
Total Posts : 305
   Posted 6/5/2009 7:27 AM (GMT -7)   
My body:    Once stong, active and attractive,
                   Now frail, weak, and unsightly
                   Once healthy and capable
                   Now diseased and immobile
My mind:     Once sharp, witty, and carefree
                   Now haunted with shadows of fear and uncertainty
                   Once inquisitive, confident, and open
                   Now cynical, unsure, and angry
   One might say I'm still the same person I used to be to comfort me that I'm still valuable, but they don't live inside this body. They don't experience 24 hours a day the aches and pains and nausea and weakness and fear of what the future holds for a deteriorating body wracked with Crohn's disease. They don't feel the side effects of powerful drugs that offer little help. This disease had a beginning so there must be an end.  
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony

Regular Member

Date Joined Feb 2009
Total Posts : 139
   Posted 6/6/2009 10:02 AM (GMT -7)   
very powerful and moving! unfortunately I understand all too well...I hope you have supportive people in your life to help you thru the bad times....

42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009
Current meds: 1200mg xifaxin, 6mg entocort, Humira (started 3/23/09), synthroid, aciphex and 1000mg of cipro
Past meds: bactrum (side effect: rash), pentasa (tried twice in a 4 week period, severe nausea, vomiting and D), levquin (ineffective), flagyl (works, hate the side effects), enemas and suppositories (ineffective), imuran- tried 2/09, landed in the ER with severe back pain and raised liver funtions....

Post Edited (goldy3) : 6/6/2009 12:58:58 PM (GMT-6)

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 6/6/2009 2:05 PM (GMT -7)   
I wish I could express myself better. That is it!! Thanks for sharing and I'm showing it to some people who need to understand better. God bless you in your struggles and victories.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 6/7/2009 8:03 AM (GMT -7)   
Well said yellowfin.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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