txmark - After I shut down my computer last night, I realized that I should have asked you something else and told you my story a bit more.
Between the time of your first colonoscopy and the second performed by the UNC specialist, were you off ALL NSAIDs? If you were, then the theory that you had NSAID induced ulcerations does carry some weight. Originally, they suspected I possibly had NSAID induced ulcerations because of my heavy Aleve and Motrin usage for my joint pains. I went off all NSAIDs for six months and they repeated the colonoscopy. I had new "erosions" and scarring from the old ones. Further testing at this point confirmed the CD diagnosis.
Sacroiliitis, inflammation of the sacroileal joint, is a hallmark sign of AS. Sacroiliitis damage takes years to be evident on xray. MRI is typically done to look for SI inflammation and damage if the xray is negative and the patient has lower back pain. Also, have you had a test for HLA B27?
I was diagnosed with spondyloarthropathy. It is one of the spondylitis diseases associated with Crohn's. Then an acute flare of lower back pain located primarily over the "dimple" above the buttock, with pain radiating into and down the buttock to the back of the thigh, got me another MRI. This one showed inflammation of the SI joint. They already knew I was HLA B27+ and so changed the diagnosis to AS. AS and spondyloarthropathy are essentially treated the same.
Do you have any other joint problems - knee, shoulder, heel, ankle? Women typically have different onset sites than men. I have been plagued with joint problems for years - plantar fascitiis, Achilles problems, right knee, and right elbow plus both shoulders. In 2002 I began having serious finger issues. Currently three different finger joints have fused on their own. I have repeated enthesitis flares in multiple joints. I was doing fairly well while on Remicade but things are worsening again since I had to stop it and then Humira.
I hope the rheumatologist they send you to is familiar with AS and looks closely to see if that is the problem. Push them for an MRI of your lower back.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.