I haven't tried this, but I have a Crohnie friend who's tried twice. Both attempts failed... She was not on TNF meds for either. It's two weeks bed rest after (for her)... That makes me wonder how I could ever try it. The success rate is not great, but I think I'd try it if it weren't for the 2 weeks. I am a single mom. Not sure how I could manage 2 weeks without overdoing myself. Someone's got to wash clothes and make dinner. (No family anywhere nearby either.)
I keep hoping others will reply with their experiences. It is something I've thought about trying at some point.
--female dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone, Tysabri
--Prochymal in Phase III study (can't wait til it's approved!)
--currently taking methylprednisolone 40mg-taper. Started Cimzia first dose 2/10/09. Dx Osteoporosis 10/08 started Forteo 1/27/09