Hi my dd was told she has Crohns just on the 5th of June we spent 4 days in childrens hopital. She is only 9. This is so sad to see so many children have this I had no idea.
Welcome, inawhirlwind! I am so sorry you and your daughter are dealing with this, and yes it is scary. And yes, I cried and cried for days after my son's diagnosis. Relaxing wasn't even a consideration for months and months. My faith (and his) helped immensely during this time, though. Also, thankfully the Specific Carbohydrate Diet (from the book "Breaking the Vicious Cycle", by Elaine Gottschall) has made ALL the difference for him along with some key supplements like probiotics and digestive enzymes. Please feel free to email me personally (click on little yellow envelope to the left) if you'd like my list of resources or if you'd just like to talk with another mom.
You stumbled across a great place to be here. There are so many people willing to share their experiences and help answer questions. Our doctors at a major children's hospital were not forthcoming, so I really have benefited from this forum! Hopefully it will be a helpful resource for you, too!