Posted 6/15/2009 3:26 PM (GMT -7)
Well long story short i'm 24 years old, diagnosed with Crohn's when I was 18. Always thought I was one of the "lucky" ones because I didnt deal with the hospitlizations like alot of us with Crohn's deal with, etc. I just had pain constantly but it was bearable and just ate once a day for dinner, and just toughed it out... Well fast forward to last year I was hospitlized about 3-4 times from the pain, then they decided to go in for surgery doing a bowl resection to remove the "bad". Well 5 days later I had a leak where they did the resection almost taking me away for good... After an emergency surgery I wake up with an Illeostomy bag on my side, and my stomache left wide open from the incision because they couldnt close me back up due to the infection. Talk about nasty, I made sure to get plenty of pictures to look back on these days because it was crazy. Well fast forward now I have had the Illeostomy bag removed (Thank god) but i'm still really not in any better shape than I was before all of this mess... Now we fast forward again to now.
I just recently started seeing a Paint Mgmt Dr. and he wanted to proceed with doing a Celiac Plexus Block, so we did that last week and nothing...
Now today he mentioned wanting to proceed with trying Spinal Cord Stimulation, and how he thinks it should hopefully work wonders for me since every medicine under the moon hasnt helped. In the little bit of research i've done I havent found to much on using SCS for Crohn's which is a little discouraging so I was hoping maybe someone on here has heard of it being used and has some info or anything along those lines...
Thanks again everyone for any kind of help, this is my 1st post here but i've been reading for a while just finally taking the plunge.