Pain is my fault?!

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Regular Member

Date Joined Jun 2008
Total Posts : 221
   Posted 6/17/2009 11:06 AM (GMT -7)   
I have had 9 abcess surgeries on my butt in the past 19 months and my butt has hurt longer than that.  about a month ago I had a colostomy to heal my rectum and to reduce the number of abcesses I got.  I now have an infection on my butt which people are conserned about.  For  me I am more conserned about the pain. I havent been able to sit comfortably for a long time and at time I can hardly walk or lay on my back.  I am dieing for some relief but my surgeon and GP both say that I need to suck it up and get over it, I will be in pain for months years to come and to get over myself.  My doctors keep lecturing me on pain killers.  I am mad because I take 60 of morphine and it does squat.  My doctors say I'm addicted to it, I dont think I am as I dont take it often.  But they say to increase my dose and I will just become more addicted to it and it will just cause me more problems.  I dont want to get addicted to morphine or any pain killer I just want relief.  I am so frusterated and angry.  No one seems to care that I am in pain and no one is willing to do anything for me except tell me to take more  morphine and ruin my life in other ways.  I need help.  My 21st birthday is in three weeks and all i want is to be able to sit through dinner comfortably.  Any help, advice.  At this point I am willing to travel the world in pain to try and get help.  I just cant keep living like this. 
Diagnosed with Crohns Oct. '07.  Have had 9 abcess/ fistula surgeries. 
Current Meds:
Imuran 200 mg                            Omeprazole 20mg                     Vitamin D 2000 i.u.          Remicade 10mg x8wks
Synthroid 112mg                          Lexapro 20mg                           Tylenol  50mg
Birth Control                                 Calcium  500mg                         Morphine 40mg
Sucralfate 1gm x4                         Multi Vit                                     Cyclizine   50mg

Sore Tum
Regular Member

Date Joined Jun 2009
Total Posts : 144
   Posted 6/17/2009 11:15 AM (GMT -7)   
Have you seen a pain specialist?
30 year old, female.
Diagnosed with severe ulcerative proctitis, Mar 2009.
Currently taking, 800mg asacol TDS, 1g Pentasa supp at night, 30mg pred (tapering over one month)
Probiotics, zinc supplements, Cod liver oil.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 6/17/2009 11:33 AM (GMT -7)   
Oh Dreamer honey have you thought (if you can) a different doctor? Pain meds with that kind of issues sounds like a good idea to me. I think if you can get a pain specialist, that is a good idea.  It just seems stupidly insensitive of them to say such things to you.  I also have to admit I am having problems with my own doctor saying stupid remarks. 

Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 6/17/2009 12:39:33 PM (GMT-6)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/17/2009 12:01 PM (GMT -7)   
I agree with both of the above, see if your family doctor will give you a referral to a pain mgmt doc. There is no reason ANYONE should have to suffer. I would even think about seeing new doctors too, the ones you have are awful. Have you seen a gastroenterologist? They are the best to see for our Crohns.

Big Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Mar 2005
Total Posts : 635
   Posted 6/17/2009 12:47 PM (GMT -7)   

I agree with the rest.  Get a new doc.  A pain management doc.  You should not have to suck it up.  That's ridiculous.  There are no trophies for dealing with the awards.

I wish you the best of luck with your issues.

28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.

Regular Member

Date Joined Aug 2004
Total Posts : 102
   Posted 6/17/2009 1:03 PM (GMT -7)   
Definitely get a pain management doctor. My primary care doctor told me Crohns patients don't have pain. I went to a pain management doctor & they were very sympathetic & helped me out a great deal. She even talked to me about the anxiety that comes with Crohns.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 6/17/2009 4:39 PM (GMT -7)   

Dreamer!  Sweetheart I am so sorry you are in such a state!!   shakehead     I remember far too clearly when I couldn't sit at all for months.  I could only lay on my sides.  I ended up with bed sores so then it was painful to lay on my sides!  But my ordeal was over in about six months (well, that first abscess).  I really feel for you! 

I agree with all above.  I am worried about the infection you mentioned on your butt.  What is it and what are they doing for it???

Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Veteran Member

Date Joined Jan 2009
Total Posts : 832
   Posted 6/17/2009 4:52 PM (GMT -7)   
I would see a pain specialist ASAP..

I understand how you are feeling before I got Crohn's I got endometriosis and the pain I had was awful before I had surgery.
And the docs never believed me so I got no pain meds :S Now I can have all the pain meds in the world and I never use them because I am afraid to get addicted.

It suck to not be able to live a normal live because of the pain.

Good luck hope you get some relief soon
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ ~

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 6/17/2009 5:28 PM (GMT -7)   
I totally empathize with not being able to sit...It is hard for many people to imagine that sitting hurts like Heck, cuz it is so natural, and for most, it is one of the LEAST painful of positions...

I cannot better say than what has already been said...get thee FAST to a pain management doctor!!!

There is a lot of misunderstanding about the difference between dependence and addiction,even doctors (probably especially them) get confused on this difference ...users on this forum, both the Crohn's forum and the Chronic Pain portion of Healingwell, have a wealth of advise and support(PAlady and straydog, to name a couple)have some pretty good threads on the difference...

To put is succinctly(if anybody can say it better, please do.), dependence is something physiological that your body needs to function correctly (like insulin to diabetics or prozac to someone who is depressed, or in our case, prednisone, which you can't quit cold turkey either), which will increase your quality of life. Addiction is the psychological craving, despite any and all consequences, of the medication, and to take more than necessary for the feeling of euphoria from higher and higher doses thereby decreasing the quality of life. Just a thought, we take certain meds (say Remicade or prednisone), that can have some pretty gnarly side effects, but you weigh the risk to benefit ratio, and find what works best...

I hope that you can find some sort of relief soon...
"The earth laughs in flowers"

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