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Veteran Member

Date Joined Jan 2009
Total Posts : 832
   Posted 6/19/2009 5:31 PM (GMT -7)   
I feel like I have gone 360 in the last year it has been a long trip and now I am back where I began.
Plus the very lovely joint pains I have now.

I am done with all the pred my only meds are Asacol which I were on a year ago and Remi which is so not working for me :(

I feel like I have gone a whole 360 and I am back to square one, I have a new doc, I have to get a new drug, the only thing I can say that I am better off now is that I am not working and my anxiety is so much better.
And frankly I don't give a dam anymore.
I feel like everything I do gets me nowhere. I am so sick and tired of trying to contact the docs to let them tell me to call again after few days an see how it is then. I am sick of having my face look like a balloon, I am sick of the nurses who have to take at least 4 tries to get a IV up and going. I sick of all the constant toilet trips that are making me weak and powerless and the food that is making me sick. I am sick of all the bruises I have people think my guy is hitting me :( and he is not !!ir
I am sick of my hair falling out and being so week and stiff in the joints that it hurts getting out of the car.
I am sick of all this bullcrap.

there you have it :)

I wish all of you are having a better day than me.
Plus my nose hurts so bad at the moment full of sores (I think it is not Crohn's related, maybe the slow healing) and I have a super busy week coming up :(
And I start prepping for colonoscopy on sunday..
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ ~

Regular Member

Date Joined Feb 2007
Total Posts : 385
   Posted 6/19/2009 5:57 PM (GMT -7)   
I'm sorry to hear you are flaring. Hope you can nip this one in the bud soon!!!
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.


Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 6/20/2009 5:04 AM (GMT -7)   
I hope you fell better soon.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/20/2009 6:50 AM (GMT -7)   
I am so sorry to hear you are feeling so bad.  But I agree with the others, although it doesn't seem like it now, better days are ahead.  When you are first diagnosed with CD it usually takes the longest to get everything sorted out for us.  Hopefully, your docs will get things figured out for you soon.
Big Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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