I'm new...first post. Have just found out i have Crohn's after 20 years of struggling with chronic severe migraines, CFIDS, and going through the horrible "cure" for Hep C (but thank God it worked for me...it doesn't for a lot of peope) 3 years ago. One year ago i got horrible diarrhea, abdomonal pain, back pain, fatigue, etc., etc. and began what ended up being 50 lbs of weight loss over a year of going to about 10 different doctors (three GP's, two gastro's, 1 orthopedist, 1 pain management specialist, 1 physical therapist, 1 OB/GYN, 2 chiro's) and having xrays, MRI of mid and lower back, CT scan of chest, abdomen and pelvis, colonoscopy, endoscopy, small bowel fluoroscopy, ultrasound of pelvis and abdomen, multiple (many many) blood, urine and stool tests, and who-knows-what-else-i'm-forgetting. I'm still paying off huge medical bills from this past year (i have insurance, but it's not that great). The docs couldn't figure it out! Finally the ultrasound that i had to rule out ovarian cancer showed up granulomas in my spleen, and a friend at work said "oh, that means you have Crohn's", and i went back to the gastro for more tests, and he said....oh, yes, it looks like that's what it is. ***?! (Is that inappropriate? i'm sorry if it is...)
Anyhoo...i went on the SCD about 7 months ago...thank goodness a friend told me about it, and was able to control the worst symptoms w/o taking major drugs. I'm on the same regimen that "EMom" is on, or has her son on. ANd i'm reading a great book called _The Autoimmune Epidemic_ by Donna Jackson Nakazawa. She talks a lot about Dr Denise Faustman's work on killing the specific misbehaving T cells in the pancreas and bone marrow causing Type 1 diabetes, and how their research can hopefully be targeted to other autoimmune diseases, attacking specific T cells, not the whole immune system. It's very promising, but still far-off, research.
ANd her "rain barrel" theory of combination of genetic and environmental factors being the cause makes perfect sense. I personally have a whole bunch of environmental factors....it's a wonder i'm not an EI. Thanks for listening...i'll shut up now!