I have been spending my summer looking for a job, recovering from various medical adventures, studying for the upcoming semester, etc.
I look back and wish I could have been/could be doing more. I want to work at the zoo but am unsure about
physical ability, I want to write as much as I can but am foggy from medication and inability to really
exercise, I'd like to sigh up for some sort of community service program or volunteer at the hospital but again, the physical ability is a factor, learn Spanish, take a dance class, and so on and so on. But these are things I'd like to do whether or not it is summer.
I was just wondering what you guys do in an everyday sort of way e.g. routine, hobbies, and so forth, without overexerting yourselves.
I just wonder if people with this condition can ever lead any semblance of a normal life. I think 'it would be nice to plan for this or that,' but I don't even know if that's realistic at this point. I have enough trouble finding a job as it is let alone plan for something in the future that requires more time, energy, and funds.
So, and honestly please, what is it that YOU are capable of every day? And do you think we could all do more or are we forced to resign ourselves to a more sedentary lifestyle in order to maintain any bit of what is 'normal?' And I wonder not only about
being sedentary but cutting out so many different kinds of food. I have tried reintroducing fruit into my diet and did well initially but am having a lot of pain after eating more blueberries sans skin and strawberries. Am not feeling so well at the moment...
Right now I mostly keep my apartment clean, try to go on small walks around the complex, turn in applications (in person or online), and my boyfriend and I have been watching a lot of 'Weeds' or netflix documentaries. I read as much as I can as well, but it doesn't come as easily as before (I would read for hours and hours straight) because of brain fog.
Anyway, this really isn't complaining. I'm just curious. I'm happy I can do what I do every day in comparison to how bad things were last summer, but I don't know anyone else in person with this disease so I don't know what kind of lives you lead and would really like to know..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general. bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."