Hi, I am new and looking for opinions. I was just diagnosed with Ulcerative Colitis on June 22. At the beginning of June I started having extreme joint pain and my feet developed large spots on them and were very swollen, which would get even worse when I would stand. I couldn't do anything but sit on the couch with my feet elevated. I could hardly get up or walk by myself. I also had spots on my legs, some sores in my mouth and diarrhea with blood. For the past 5 months I have had diarrhea for the two weeks following my period. I have had problems for years with urgency, loose stools and diarrhea. I went to my PCP and they had no clue what was wrong with me, but sent me to a rheumatologist. He thought I had an infection and eventually admitted me to the hospital, where I stayed for eight days. There I saw an infectious disease doctor who had me see a dermatologist. They did a biopsy of one of the spots on my leg and the results came back positive for Erythema Nodosum, an inflammation of the fatty tissue. They were ready to leave it at that, but I pushed to get an answer about my chronic diarrhea.
The GI did a colonoscopy and told me I had UC, which caused the Erythema Nodosum. She also did a biopsy during the colonoscopy and took blood for the Prometheus test. She said there was still a chance I could have Crohn's and this would help determine that.
Here is where I am looking for opinions. Her office called today with the lab results. Unfortunately, the person who called was kind of clueless. She said the Prometheus test came back positive for irritable bowel syndrome (she kept saying this and not inflammatory bowel, so I guess that is what she meant) and Crohn's. So, I said "okay, so I have Crohn's and not UC". She said it looks like I have 'some' Crohn's or something like that. She then said the biopsy showed signs of IBS and colitis. So, she told me the doctor said to stay on my medication and she would see me at the follow up appointment on Monday.
So, I am very confused - do I have Crohn's or UC? I know I will find out on Monday, but would like to know where to focus my research over the weekend, so I make sure I have a good grasp of the disease before my appointment on Monday. I want to be able to know something about it before my appointment, so I better understand everything she tells me. Has anyone ever had these results, if so what was you diagnosis?
Thanks so much and sorry for the lengthy post!