Sun Intolerance and Crohn's

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Regular Member

Date Joined Apr 2005
Total Posts : 386
   Posted 7/2/2009 12:27 PM (GMT -7)   
I have been a dedicated sun worshiper my whole life. Growing up in Southern California, I have basked in the sun for years without a problem. I love the beach and the desert...the hotter the better. However, the last two summers, I seem to not be able to handle the heat anymore. I get a strange headache and nausea. Even with limited exposure.
I have had crohn's now for 9 years and am currently on Humira. I am so bummed, being out in the sun is a big stress release for me. Has anyone else experienced an intolerance since having crohn's or taking Humira? Thank you.

Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 7/2/2009 1:02 PM (GMT -7)   
hmmm. . . I'm guessing you are getting dehydrated fast which could be due to the humira, active crohn's and diahrrea, and/or to low iron. Are you anemic? Do you have a lot D lately? Due to anemia and my ostomy, I can't handle the sun at all and need lots and lots of liquids in warm weather.

i hope you are using a good sunscreen--just had three moles sent off for biopsy myself. Sorry if I sound like I'm scolding.

Good luck!
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 7/2/2009 1:17 PM (GMT -7)   
Hi yeah i usually love the sun like yourself But this last week has been awful so hot i can't even sit in it. i have a temp stoma and have quite alot of output so have to force myself to drink loadsas i the winter i got dehydrated twice and ended up in hossy hopefully when the bag has gone i  will be able to bask in the sun next summer!!!! Bev x

Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma. Asacol, Flagyl, B12 shots,iron syrup,loperimide, Sertraline 50mg (for Anxiety)

Regular Member

Date Joined Apr 2005
Total Posts : 386
   Posted 7/2/2009 1:18 PM (GMT -7)   
Even if I am driving around on a hot day and not directly in the sun I feel horrible. Never thought about dehydration?? I will defintely up my water intake. Unfortunately, Humira has never worked as well as Remicade for me and I am not in complete remission since being on it for 3 years. So yes, depends on the day, but I typically have lots of D!

Yes, I now have given into wearing sunscreen and hats after 3 bouts of having skin cancer removed.

Thanks for your input! Take Care!

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 7/2/2009 9:31 PM (GMT -7)   
If you are avoiding the sun, be sure to get extra vitamin D. Summer sun exposure provides vitamin D stores that supposedly last through the long winter months, but with sun screen and sun avoidance, you definitely need extra vitamin D. The top recommended dose is 2000 IU, but some researchers think that 10,000 IU is a more reasonable limit. It is important for immune health and bone strength. Ask your doctor.

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 7/3/2009 4:54 AM (GMT -7)   
I have no problems with the sun. It feels good and makes the human body happy.
Our bodies are always changing and maybe now the sun is affecting you and not the disease or drugs. Have you tried wearing some kind of a hat?
Just my opinion.

Good Luck!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Regular Member

Date Joined Jul 2009
Total Posts : 83
   Posted 7/6/2009 3:59 PM (GMT -7)   
I love being in the sun too and don't have any problems except for burning easily (I'm on 6MP too which I know we have to watch sun exposure closer, but I could never give it up). Plus all the natural vitamin D is so good for you. Bottom line, try out a few things and find out what works best for you so that you can feel healthy and not have to give up something that you love!
**Diagnosed with ulcerative colitis in 2001; diagnosis changed to Crohn's disease in 2009 (but still only impacts colon)
**Asacol (4800 mg daily), 6-MP (100 mg daily -- recently switched from Imuran), Prednisone (8 mg daily...for a few more weeks), Flagyl (250 mg every other day), Nexium (40 mg daily)
GOAL of one day being immunosuppressant free...still working on my doctor on this one but I am a world traveler who desperately wants to go to Africa one day!

Regular Member

Date Joined Jun 2009
Total Posts : 202
   Posted 7/8/2009 6:45 AM (GMT -7)   
I thought that my issue with the sun was due to the medications I'm on - and Humera is one of them. When I go out and do something as simple as mow the lawn, my face gets bright, bright red (not burned) and then it usually takes a couple of hours to return back to normal color. I hadn't really given it much thought beyond thinking it was a bit strange. I, too, grew up in So. CA and never had a problem before taking these darn medications for my Crohns.........
Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum.  Currently have C-Diff.
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Levsin, Welchol 625mg, Flagyl 250mg, 3xday, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone & Entocort

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