hi all. I'm feeling better than I did - thanks for letting me get it out there. I've read other posts about reactions from family and friends and how disappointing it can be.
I've gone back to work today and yes, I got the 'you look great' (because of my tan) and 'did you have a fab holiday and how drunk did you get?'. I decided to tell a version of the truth because it makes me feel resentful covering up how I am feeling - I think this is sometimes why we get ill. I don't think some of those people will be asking again but it was lovely to get appropriate responses from a few people. Family still can't cope with it all and I'm avoiding speaking to friends too much until I've got good stuff to counterbalance it. Heaven knows what they'd be like if I had the ongoing awful situations that many of you have to deal with every day!!
Littlemissmuffett - I went by myself; I decided a few years ago that I would rather holiday by myself and be free to explore & do what I want. I was going to go with my sister this time but she couldn't get time off work so I was stubborn (or naive) and booked it anyway. Don't know if having someone there would have helped though - I think I would worry about ruining their holiday and bottle it up even more.
Can't win eh?? anyway thanks again - hopefully sometime soon I'll post saying I'm pain and anxiety free. xx
diagnosed aged 31 in 1996 - emergency surgery (right hemicolectomy). Thought I'd only get 'it' once and have lived in relatively blissful ignorance, apart from a couple of hospital stays for obstructions (scar tissue), until March 09....major surgery, 2 resections, fistula and now only 195cm small bowel left. Not on any meds at present except B12 injections but know there will be some. Just getting used to my 'new' body and it's limitations........