I think I was switched at birth

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Regular Member

Date Joined Nov 2007
Total Posts : 147
   Posted 7/5/2009 3:10 PM (GMT -7)   
Anyone else the only one in their family with these issues? I am really starting to think I am not related to my family. No one in my family has crohn's, celiac, or PCOS. The closest thing is my cousin who has IBS and mom has it sometimes too (totally stress related for her). Both of my parents and my sisters have been tested for celiac...all negative. Not that I want anyone else in my family to suffer with these diseases its just weird since most of the people I know who have these conditions have other family member who also have them. Come to think of it I don't look much like my sisters hmmmmm turn

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 7/5/2009 3:16 PM (GMT -7)   
I'm the only one in my family with CD, but my dad admits that they "found me under a rock". It's something we joke about, but I can't question if I'm theirs cuz I look just like my dad.

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05
Currently on Humira, Prilosec, Effexor, Seroquel, Calcium, Vit D, sublingual B12; phenergan, ultram, clonazepam as needed

Regular Member

Date Joined Apr 2009
Total Posts : 71
   Posted 7/5/2009 4:39 PM (GMT -7)   
I also have a host of auto-immune and GI issues that no one else in my family has.  However, the rest of my family has high blood pressure and high cholesterol (mine are always within normal range, despite having just about every risk factor for both).  A few years ago my marathon-running, health-nut brother called me up demanding to know my blood pressure and cholesterol (he had just had a physical and learned he got the family traits) - he was pretty pissed off when I told him I was in normal range.  I told him I'd gladly trade him any one of my conditions for high blood pressure and high cholesterol - that shut him up pretty quickly :-).

33 - Diagnosed with Crohn's in Nov. '05
Current Meds: Apriso, Methotrexate, Pamine Forte, Aciphex, Domperidone, Folic Acid, VSL#3, lots of vitamins/supplements
Gluten free since Aug. '03

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 7/5/2009 6:10 PM (GMT -7)   
Me too! I'm the only one in my large family that has crohns.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Regular Member

Date Joined Jan 2009
Total Posts : 209
   Posted 7/5/2009 6:38 PM (GMT -7)   
Grrr,me too!
diagnosed 1981
remission until 2006
Entocort, 6mp,Hydrochlorothiazide
Remission since surgery
and 8-week Remacade.
d since 1981(enjoy the look
on Dr's faces)

Regular Member

Date Joined Feb 2009
Total Posts : 82
   Posted 7/5/2009 6:50 PM (GMT -7)   

Same here.  My dad blamed the fact that I'm a vegetarian.  He's been told by two GIs that it has nothing to do with it and hasn't said anything since, but I know he still believes it ("No one in my family has any problems...").  Well, no one on my mom's side did either.  My sisters are in near-perfect health.  In fact, I seem to be the only one in my family who had any big, frequent health problems.  I could give you the list, but I don't think this forum could handle it and I'm positive that none of you want a list of all my ailments (you all have your own lists, I'm sure).


But, yeah... My diagnosis is a mystery to me.  I can't wait until medical science cracks this riddle not only for the advancements in treatments, but also because I'm just so curious.

22 years old, Female.
Diagnosed with Crohn's Ileocolitis November 2008.
Currently taking Humira.

Veteran Member

Date Joined May 2009
Total Posts : 703
   Posted 7/5/2009 7:56 PM (GMT -7)   
I've done extensive genealogy research on my family and am not aware of any relatives, past or present, that had or have Crohn's. There was one great-grandmother who was described as "sickly" most of her life--perhaps that was IBD. Diagnoses of IBD and particularly Crohn's don't seem to go too far back (early 1900's and 1930's or later for CD) so perhaps they were referred to something else back earlier, and/or IBD was less common (possibly due to less sterile foods/environments, as one or more theories go). I've looked at hundreds and hundreds of old death certificates and don't recall seeing any mention of contributory GI issues.

New Member

Date Joined May 2009
Total Posts : 10
   Posted 7/5/2009 8:33 PM (GMT -7)   
While no one in my family has Crohn's disease, my family is prone to other autoimmune disorders.  My mother, her mother, and my aunt all of thyroid disease (yes, this is auto-immune), my father has HBP, diabetes, and his father had colon cancer.  I've been checked since I was 17 for thyroid disease, always expecting each year that they'd say I needed to start on some type of thyroid therapy - however, I haven't needed it yet! Instead, it seems that it's settling in my GI system...oh well...that's the way the cookie crumbles sometimes!  I'm learning to deal!

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/6/2009 7:42 AM (GMT -7)   
Yep, I am another lucky one here, only one in the family with IBD. I do have a niece and a nephew who have Epilepsy, not sure if that is autoimmune or not. My mom always thought that I may have inheritied it from my fathers side. My Dad's mother and sister were known to have bad stomach problems all their lives. Who knows????
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 7/6/2009 8:49 PM (GMT -7)   
My mom didnt' get sick with her ulcerative colitis until a couple of yrs AFTER I got sick with crohn's...with IBD you just never know when it will hit...to date my mom and myself are the only ones that have IBD, that's not to say other siblings won't also end up getting it at some point.

My bum is broken....there's a big crack down the middle of it! LOL :)

Regular Member

Date Joined Apr 2009
Total Posts : 111
   Posted 7/6/2009 9:58 PM (GMT -7)   
When I was diagnosed, my dad told me I was a "freak" and that I definitely didn't get it from his side of the family!
. . . fast forward to a few months ago, when my father was in the hospital for a host of unrelated problems, and during testing, they found evidence that he may have Crohn's as well.

I think a lot of lack of obvious genetic links doesn't necessarily mean there isn't one. Someone may have just chalked it up to a sensitive stomach and didn't bother to get a diagnosis -- as was the case with my father.
Diagnosed with Crohn's in 2008 at the age of 22.
Currently taking: Azathioprine, tramadol, welchol, promethazine
Surgeries: Cholecystectomy (2007)

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