Newly diagnosed with Crohn's

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New Member

Date Joined Jul 2009
Total Posts : 2
   Posted 7/6/2009 6:44 AM (GMT -7)   
Hi Guys,

New member here from the UK

Just looking for a bit of advice, here's a bit of my story......

Diagnosed last August with Ulcerative Colitis after endoscopy, was put on Asacol, had 3 bad flare-ups since and was have been on prednisone between 20mg - 40mg for 7 months, had a full colonoscopy in May with biopsies taken, I have just been diagnosed last Friday as having Crohn's Pancolitis? The specialist said my whole colon is affected and found Granuloma's etc in my colon, I can't really find any specific info about Crohn's Pancolitis apart from the odd bit, it seems, from most web sites I have found that Pancolitis is ulcerative colitis and Crohn's is different (one or the other), as I say there is only the odd article that mentions it as a disease together. Just wondering if anyone has any info about this? I've also been cutting down on wheat, gluten etc as i have read it may help. Anyone have any suggestions where to go for good diet info? The specialist put me on Azathioprine on Friday, I've read lots of bad things re: side effects about this drug. Any info suggestions from you guys would be greatly appreciated.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/6/2009 6:51 AM (GMT -7)   
Many people have success with the SCD, or Maker's Diet. These diets work for some, but cause problems for others. Diet is pretty individual for each of us. I personally live on a low residue diet and it works well for me. I eat no red meat, as it is difficult for even the healthy system to digest. I do eat alot of fish, chicken and turkey. Veggies cooked till there very soft, things like that. You can google it and get ideas. I would suggest you keep a food diary and keep track of which foods upset your system and those that agree. Also, Imuran (same as Azathioprine) is one of the medication known for really getting folks into remission. It takes about 3 mos to kick in. As for the side effects, most people take much higher doses of this med than we Crohnies do, so I would not worry so much about those. There are folks here who have been taking this med successfully for 10 years or more.

Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

New Member

Date Joined Jul 2009
Total Posts : 6
   Posted 7/6/2009 3:29 PM (GMT -7)   
my daughter has had stomach probelms for about 4 years diagnosed as ibs though just diagnosed two weeks ago with focal crohn's colitis. she did the scd diet for a month in january with two gluten free products a day. she did great. she had an egg in the morning but started getting a headache so she swtiched one of her gluten free s to rice chex. she eats a ton of apples and salads and is going to the bathroom 7 - 10 times a day. she has been on pentasa for 3 weeks and flagyl for 2 weeks with 2 more weeks. she is 18going to college in the fall. i feel like we are going backwards. for some reason two months ago her bathroom times picked up which is why her gi did a scope. she was eating these peanut and nut bars like there was no tomorrow. could that have triggered it? do you ever feel good? fatigue i awful. when people are on the scd diet how much fruit do they eat? she is so hungry all the time. the almond biscotti on the scd site is great!!! can anyone give me some hope and what are the best ways to support her?
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