home from my first CD hospitalization

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Regular Member

Date Joined May 2009
Total Posts : 201
   Posted 7/6/2009 8:56 AM (GMT -7)   
I went to the ER last Tues night.  They did a CT scan and told me that my appendix and colon was inflammed and called in a surgeon.  Thankfully the surgeon specialized in bowel surgery and said it would be too "messy" to remove my appendix and felt it was all r/t my crohn's.  Admitted me, started IV steriods, cipro and flagyl.  I am home now, on Prednisone for the first time. I was on 60mg in the hospital.  Now 20mg twice a day.  I read the other posts about Prednisone so I will try those suggestions.  I have an appt. with my GI doc next week.  Hopefully I can taper off of these soon.  I'm wondering how that works.  Could anyone explain that to me.  Since I was on 60mg IV and now 40mg by pill, that will put me on 40mg for 2 weeks all together before I see my doc.  My pain in my stomach is almost gone. I guess it was just alot of inflammation.  I feel new to all of this.  I'm eating bland....white toast for breakfast, white rice for lunch, chicken soup for dinner.  Now I'm not sure what to do with my diet.  I'm afraid to eat!!  I think I'll go buy the SCD book.
By the way, you all are alot of help on here.  My husband told me not to read this b/c I haven't had surgeries and he thought all this would make me anxious or discouraged.  but I feel I gain alot of info and encouragement.  I did cry alot at the hospital thinking of what could be ahead...but I can't bury my head in the sand.  I refused meds for first 3 years and maybe I would be better if I had taken maintenance meds.
Thank you all so much.
Diagnosed with CD 3 years ago.  Refused to take meds until recently started Colazal. 
I live by faith and not by sight....

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/6/2009 9:06 AM (GMT -7)   
I had two flares when first diagnosed and then enjoyed a 20 year remission med free. Mine ended abruptly with a emergency resection. I too will never be med free again, because as I was busy trying to ignore I had Crohns it didn't forget me and was still in there doing its damage. Remember diet may help to control the symptoms but will not stop the inflammation. Be sure you always stay on some type of medication, no matter what diet you figure out works best for you. I personally live on a low residue diet. Its easy to chew, easy to digest and it works well for me.

I am so sorry you had to be hospitalized, but am glad that you are on the road to feeling better. When I have been on Pred, I usually weaned down about 5 mg every week. Be sure to wean slowly or your symptoms can return. I would also suggest you take all your Pred as early in the morning as possible, this will help you avoid some of the insomnia side effects that can occur. Good luck and hope your feeling better everyday.

Gail *Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Jun 2009
Total Posts : 354
   Posted 7/6/2009 1:55 PM (GMT -7)   
I'm sorry you had to be in the hospital. I know the feeling. I get flar ups from just starting my period I'm hospitalized from every month to every 2 months. They finaly stop giving me pretz asthey would work when I'm on them.. the second I would finish my last dose it would all come back. What they did for me was..I start with 8 pills a day.. each week they would take a pill away untill I'm down to taking 1 pill for a week. then 1 day I don't take any the next I took 1 more pill and I was done. Very important to go off of them slowly. I agree with the last post, try to take them as early as possible. I wasn't able to sleep on them even with sleeping pills. So it may help to take them as early as possible.  I don't suggest Predz to be a reg med you take to control the CD talk to your talk about something else if your pains come back after your done the Predz.
Hope this help.. have anymore question let me know. I've been on Predz 6 times (I think or more)  Good luck, hope you were pain free today!
24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.thinking of taking MTX

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