I am so relieved to see these posts. On the ohter hand I am truly sorry for everyones pain and discomfort. I bounce back and forth as well. It is a major job to keep up with what I can and can't eat. What I also found true for myself was that I would find something that worked like plain pasta or soup(low Sodium) I was so happy to find something that I didn't have an instant reaction to that this would be on the list as a staple for a while. My list was very short! After a few weeks of this my symptoms which have been flaring for almost four yrs now would return. SO I'd wait awile before I attempted, say, the pasta. It was almost as if my body recognized what the food was before I got the chance to digest it. D or c would surely follow and that food would be taken off the list. I have been disabled for almost five years. In this time I have read the books, searched the net, talked to other sufferers and no two people are exactly the same. SOUNDS DEPRESSING. I did however come up with a list of foods that I rotate. I've learned to make sure that I am getting protein and vitamins through my food. Any time I have tried supplements I would get violently ill. I saw three nutritionists who weren't of much help other than to make sure that I knew I was overweight. Because I have both IBS and Crohn's it gets very complicated to explain to the dietary people what my system will process. I try to take Miralax everyday - it helps with both but you have to take it with plenty of water. It is much gentler on your stomach than the other products out their. You are corrct to stay away from sweeteners and sweets. The bacteria that is present in you gi tract will feed off of the suger which in turn will cause the pain, bloating and excess gas as well as other issues. Remember that most basic carbs break down into sugar. Small amounts of different foods are best for me. If it's d I start with some rice soup. Not too much cause it can have the opposite reaction due to the rice. I lived on rice and canned green beans for three months. I tried a gluten free diet(which did help for a time)I tried to cut out all high fat foods. There are decent fat free alternatives out there. Basicallly I have fish(mild), chicken - very interesting...if I tried to eat a cooked skinless boneless chicken my stomach would ache. I tried cutting it into thin strips or chunks before cooking it and it made a huge difference. I haven't had a problem since. Ironically enough I can eat some mexican food(fat free totillas, ground beef, rice or refried veg. black beans, fat free sour cream. no lettuce, corn, onions, peppers or corn) I don't eat it often and I always make it myself. I'm a huge fan of quick cooking. Casseroles mostly but I am very careful not to overlap. I can eat 85% ground beef. When I need comfort food that is not to rough on my gi I will cook ground beef drain it and mix it with mashed potato and season(parmesan cheese/salt). I avoid most spices with the acception of salt and garlic. Pepper is a huge no no for me. Canned veg or thouroughly cooked veggies(string beans, wax bean, carrots. Not the best tasting but to use fresh I kknow I will have problems. I drink peppermint tea which does settle my stomach(hot - caffiene free and not motre than two cups a day.) It really is a full time job. But one that can be rewarding as I can avoid some of the trips to the bathroom. I rarely eat out. I do miss dining out but the thought of ruining a dinner because I feel sick is just not worth it. I will do it on occasion but. I stick to what I know which usually means a hamburger with little on it. Battling C and D is tough and very discouraging. Sorry to ramble on but this is the one thing that I feel I have some control over. It does not mean that I don't wish for other foods cause I really do, but trying to be pain free is more important to me as well as avoiding a feeding tube or hospital low res. diet. You know best when it comes to your gi system. It will undoubtedly take some work. I hope things start getting better for you soon!
Formal diagnosis 3/2006, IBS 1992, Degenerative Arthritis Facet block and RFA, Seizure Disorder, Severe Carpal Tunnel both hands, SVT arrythmia, 2004 cardiac Ablation
Cushings Syndrome(thanks Prednisone), Asthma, Multiple Laps for ovarian adhesion to bowel, C/5 & 6 disc herniation - plate with screws, resistant to anethesia/most pain meds. Chronic fungal infections.
Multitude of Meds. Have tried most Crohn's meds. Gall bladder removal and Intestinal Lap. June 08.- Intestinal blockage July 08 moved on from on Humira..now on Cimzia.
Post Edited (moedon1) : 7/9/2009 11:19:26 AM (GMT-6)