I have been on Remicade since last October, I still have the odd off day, but generally I am doing well on this drug. I have met others at the hospital who are also doing well.
It is an easy proceedure, painless, but I can imagine a bit scary for an 11 year old. It might take more than one session however to feel the difference.
I dont regret taking Remicade and will continue to do for as long as it helps me. As far as I aware there is no evidence that it increases the risk of cancer, but I understand your anxieties about giving such a big drug to a young child. I generally find my infusion time quite a peaceful one.
The first infusion normally takes 2 hours then your daughter will be monitored for 2 hours afterwards, after the 1st 3 sessions I only have to stay for 1 hours after. You can eat and drink as normal during and after the infusion.
I didnt have any major problems after the infusion, just a sinus headache and a bit tired.
My life has certainly improved and I am grateful for that
My best wishes to you and your daughter
Current medication - infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol