I consider myself as always in active disease with occasional mini flares and a flare every 5-8 years. To me:
Active disease--daily symptoms including quick bathroom trips, cramping and minor skin issues, things I can work around in daily life
Mini flare--happens every few weeks to months and involves several days of no solids and lying on the couch with either pain or harder cramping of my gut, visit to doc not needed
Flare--pain and multiple bathroom trips that require more serious meds to get past (prednisone), requires visit to doc
I guess I am the definition of mild disease. Now can you tell I am a person who makes structure when there is no structure
I set these definitions up for myself so I could describe my day to day feelings to those in my family.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....