I see you got tons of reply's. I just thought I share my experience with Remicade. I was on it for about 1 and 4 months.
Started off working amazing, was able to add things to my diet, like milk,green vegy's.But about 8 months after starting it. I got horrible joint pains. so they brought me to every 7 weeks, ok helping with the joint pains, but keep getting worse, closer to the time need the infusion, waiting a week in horrible horrible pain. so they brought me to every 4 weeks. No relief after they did that. My crohn's got supper worse, and I went crippled. What happend sometimes is your body starts to get use to it. I also found out because Remicade isn't all human, part mouse. People especially with Crohn's you can get antibodies from the remicade which is where the joint pains and cripplness came from.
This is just my experience. Remicade can be your sons 'med' and work for life for him. I was though ask the doctor about a med that could avoid the antibodies. I.e Imuran, MTX (I don't know the others)
I've just start humira, which is allot like remicade,and I am not crippled anymore (in less then a week with the help of imuran) and the pain is almost all gone.
I hope everything works out for your son! good luck
24 year old woman. Crohn's all my life but diagnosed at age 18.Been on prednisone 8 times. which they will not give me anymore(doesn't work for me)I am on Prevacide for the ulcers I get in the stomach,pantesa. I've been on and off imuran,entocort,number of others I can think of. I have cronh's in the small bowel,colon,stomach. Since Nov 08 I've been suffering from RA which is just as bad as CD. haven't been able to work for the last 2 years. Awaiting to start Humira since being on Remicade for 1 year 4 months that no longer works.Hoping to get my life back with Humira.