Hello, wonderful site

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Jul 2009
Total Posts : 3
   Posted 7/22/2009 8:43 PM (GMT -7)   
Wow, kinda accidentally stumbled onto the site today, broke my fingers trying to sign up as quickly as possible. It's so great to FINALLY find a place where people will understand what I'm talking about. I've got ten million questions, but I'll be a good noobie and search existing posts first, I promise.
I look forward to being a part of this community.


Sore Tum
Regular Member

Date Joined Jun 2009
Total Posts : 144
   Posted 7/22/2009 11:47 PM (GMT -7)   
This place is amazing, it really helps you fill in the huge gaps in information that the docs neglect to share.
Hope you find it helpful.
30 year old, female.
Diagnosed with severe ulcerative proctitis, Mar 2009. (Doc unsure if it's Crohn's).
2 fistulas, 1st op july 2009, now the proud owner of a seton, ?awating sugery for 2nd fistula.
Currently taking, 1200mg asacol TDS, 1g Pentasa supp at night, Probiotics, zinc supplements, Cod liver oil.
Past meds: prednisolone, colifoam ememas.

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 7/23/2009 4:11 AM (GMT -7)   
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/23/2009 6:16 AM (GMT -7)   
Welcome Dave!! You will find a wealth of information on this site as well as some wonderful and supportive folks. Again welcome and I look forward to hearing more from you soon.

Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

New Member

Date Joined Jul 2009
Total Posts : 3
   Posted 7/23/2009 7:03 AM (GMT -7)   
Thanks all!  
Indeed, big gaps in info is pretty much what I've experienced in the last two years. When I was diagnosed, I got handed a pamphlet about crohn's. My personal doctor does the best he can, but finding a decent G.I. has proven a bit more challenging.  
I was diagnosed with chron's and/or U.C. in July of 07. I had been sick for several weeks. It had only happened once before, I'd spent about six months extremely ill in my early 20's.......my doctor at that time was insistent that I must have some strange virus or maybe I had problems with stress. I'd lost close to 40 pounds by the time things more or less cleared up on their own. When it started again, I was pretty terrified.  
It would seem I'm rather lucky. After an initial stay in the hospital, I was put on asacol........which took awhile to kick in, but has done a great job up until now. I was referred to a GI around October of 07, my first visit he met with me for about 10 minutes and kind of glanced through the paperwork my doctor had sent in. The second time I met with him was when I had a colonoscopy. At that time he said he couldn't find any active cronh's, and would like to take me off of my medication to see if I'd flare up again......I consulted my personal doctor, who decided that would be my last trip to that particular GI, lol.  
Other than that, I'd say I've felt pretty good for the last year or so. I'm grateful for every day I get, because it could be a lot worse. My only real complaints at this point are frequent ulcers in my mouth that make it hard to talk, and pain in my right hip that seems to be related. One of the more interesting side effects is my weight, I was always a skinny, sickly looking kid.........when I was diagnosed I weighed maybe 150 pounds, and I was in good shape, I'd been working on a landscaping crew. I've picked up almost 60 pounds in the last two years, although that seems to have leveled off. I don't know if it's just because I can actually eat without feeling sick for the first time, or what....Doc says I might want to lose a few pounds........but I told him maybe I need a "cushion" for if I get sick again. 
Anyhow, that's my story and I'm sticking to it as they say. Everyone have a good day!! 

Veteran Member

Date Joined Jan 2005
Total Posts : 1831
   Posted 7/23/2009 8:47 AM (GMT -7)   
Glad you found us! I know how you feel, when I first found this site all I could think was that I wasn't alone any more!!!

Regular Member

Date Joined Feb 2009
Total Posts : 269
   Posted 7/23/2009 9:41 AM (GMT -7)   
Welcome to the site. I found it last year and have found it a great support and help
Diagnosed 2005.
Current medication  -  infliximab infusions, ranitidine, ferrous sulphate, Vitamin B12 injections, asacol

Veteran Member

Date Joined Jan 2007
Total Posts : 656
   Posted 7/23/2009 10:35 AM (GMT -7)   
It took me years to find this site, which I now check daily. It's incredibly helpful, and we're all very appreciative of and sympathetic to one another. Welcome aboard!

Veteran Member

Date Joined Jan 2006
Total Posts : 3143
   Posted 7/23/2009 12:23 PM (GMT -7)   
Welcome Dave! I've been hanging around this site for some time now and still find useful information and great support. The folks here know how to empathize and also how to have a laugh at this world of Crohns. Visit often!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 17, 2017 5:27 AM (GMT -7)
There are a total of 2,906,395 posts in 318,953 threads.
View Active Threads

Who's Online
This forum has 158292 registered members. Please welcome our newest member, LaNae.
240 Guest(s), 2 Registered Member(s) are currently online.  Details
dbwilco, ljimd