Okay, I guess I should start by saying that I have been living a 2-year long IBD diagnosis ordeal. I was told in the beginning that I had "focal active colitis" and that it would go away with azulfidine treatment. It didn't, and I keep going back & forth between being ill & being okay (not great, but okay). I have had blood in the stool, with usually 4-7 bms a day. I had lost 50 lbs. Small bowel follow through showed inflammation in LRQ. Most other tests were normal. Stomach ulcers. Migraines. Ear problems (needed tube in ear). Abdominal pain. Stuff like this for the last couple years... I recently went to a new GI at a teaching hospital who went over my records & biopsies & said that I had microscopic (lymphocytic) colitis. She put me back on azulfidine, but a double dose of what I was on before. She did tell me that early in the disease, crohn's resembles microscopic colitis, so it may possibly still be CD, but they were going with microscopic colitis. I felt like at least I was told it was IBD, and that it would probably come out as crohn's down the road as my PCP had told me. She told me that the "lesion" on my bum was something that people with crohn's get, but that doesn't mean I had crohn's.
I was doing pretty well. My BMs were down to 4ish a day. Then I started to feel under the weather again. I had been under a lot of stress, so I think this might have played a part in it. My BMs totally changed. I went to not having any for days & days, then having diarrhea. Lots of mucous & blood in the mucous. I have had complete exhaustion. Then last weekend, I again was ill. Horrible abdominal pain. All I could do was curl up in a ball & try to keep from crying. I was nauseated. I only ate oatmeal that day trying to be calm to my tummy. The next day I was still feeling horrible, waking up in pain. I was dizzy so I figured I would eat, I had a piece of toast with butter with a tiny glass of milk. It hurt after eating. My husband asked if I wanted some potatoes & it sounded good, so I thought I would try it. about
a half hour to an hour later I was in the the bathroom vomiting violently. It took some retching to even get the vomit up, it seemed to come from my toes. I kept vomiting every 15 minutes after that for abotu 4 or 5 times with lots of bile. It was so painful, it brought tears to my eyes. It didn't feel like normal vomiting to me.
My husband suggested the ER but I didn't want to go since I have had bad experiences there. I decided to hold off & see if it would pass or call my doctor Monday morning, which is what I did. I couldn't get in to see him, so they suggested urgent care. I went & they did xrays & checked my urine (I have had lots of UTIs & also a kidney infection before). I had blood in my urine, but no infection. The doctor looked at the xrays & didn't like what she saw & printed my xrays to take with me & sent me to the ER. She felt I had a possible obstruction & that I had 2 strictures. At the ER (after a 3 hour wait) they gave me an IV & zofran & prevacid. Blood tests showed mild elevation of my WBC, but everything else was normal. They said there was no infection. I was told the xrays showed no obstruction, but they thought there was some inflammation & gastritis. (can they tell that from plain xrays?). I was sent home.
I hadn't eaten anything Monday or Tuesday because I was deathly afraid of the pain I experienced when vomiting on Sunday. Tuesday, I had called my GI as instructed by the ER doc. They wanted to see me right away, so I went down there. They did blood work & ordered xrays. My belly is not tender where they pressed, I am having most of my pain right around my belly button, and just above it. I was told it was probably just IBS. When I asked about
the lymphocytic colitis, I was told there is nothing in my symptoms to suggest I was have a flare of that. I was told to drink gatorade & work my way to soup then solids as best I can.
They called & told me my labs looked good. I am so confused. How can IBS cause all this? What can I do? Does anyone ever go through a flare without having much show up on your bloodwork?
I am hoping to get my life back. If it's not CD or colitis, then I keep thinking it's something that my be fixable & I want them to figure it out already!!! It's just all so confusing. I want to be able to eat again & not have pain. I don't know what to do....
Live for today, for tomorrow you might just get hit by a semi.
Post Edited (hukleberrie) : 7/24/2009 11:35:10 AM (GMT-6)