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Regular Member

Date Joined Jul 2009
Total Posts : 37
   Posted 7/24/2009 11:06 AM (GMT -7)   
So basically after nearly a year I decided to join a forum (after reading nanner's post I decided that this was a good one). I am a 23yr male and was diagnosed late last year with Crohn's although I was thick-headed about it and had the OBVIOUS symptoms of it for probably 2 years prior and had Dr.'s brush it off as IBS or as an elaborate scheme to get pain pills (emergency room visits that my parents dragged me to when I could barely move lol, and yes being a young male sucks as every Dr. seems to think you want "the good pills"). I look back at the beginning of 2008 when I began my new job at Scott's Lawn Service (I lost my previous job due to too many sick days surprise) the first 3 months were relatively easy as it was mostly sales (hard enough for me with my anxiety problems caused me to stutter on the phone but, I still managed to beat out nearly everyone else) then came the hard part production, this is where you push a 100lb spreader across a lawn in 100 degree weather (I also live in TN and we have hills so bad that we charge more for a lawn and call it the **** factor). As you can imagine this nearly killed me on a daily basis, having to stop 5+ times a day to use the restroom didn't help either but, I did it anyway without missing a single day (I look back and laugh at this 70hr+ work week thinking I have it bad now). After about 4 months of this and 2 really bad sprained ankles (hills will make you fall too) my body just gave up and I couldn't move let alone get out of bed, emergency room later that day after I fell in the bathroom. The Dr. gave me bentyl for my stomach pain and celebrex for everything else (he even went to my parents and asked if i had a history of drug use as I couldn't possibly be in so much pain), I took a week off of work as I could still barely move and started to worry if something was really wrong with me. 3 weeks more of the same job and I was just getting worse and worse and I finally quit one day when I just couldn't move or get out of bed. It sucked I had to move back home and my GF was really mad at me for quitting. A month goes by and my parents are threatening me to get a job or live on the streets all the while I'm in so much pain I can hardly see straight. I get some b.s job and after a week quit because my body now won't even give me the energy to do anything for 8 hours. My mom finally thinks there might be something wrong with me one day after seeing me without my shirt on, we go to a different Dr. and he says "try no gluten for 1 month" wow did that not work. Finally I get a double scope, and they tell me its Crohn's disease, I was so happy you have no idea (no sarcasm). So finally I have the support of my parents and friends, then a month later my GF of 3 years breaks up with me (by myspace email wow) because "she doesn't want to be with somebody that can't hold a steady job", that still hurts to this day, so if you have a significant other that supports you LOVE them all you possibly can and appreciate every minute of it. So I finally start a couple meds eventually remmicade and finally pain pills (I cried the night I got them because I forgot what it was like to not be in such pain). Time passes little improvement second scopes, "healing slowly" they say. During this time I realize I may never be the same again. Fast forward to my last treatment get an x-ray I got feces larger than my lung blocked up, wow at the abdomen pains that night. My Dr. also says that I should be in full remission right now too (based on my last scopes done several months ago) and that my pain should be minimal and slashes my pain medication by 2/3s (young males apparently can't take pain meds for pain lol). So for the past 2 weeks I feel like I've gone back a year in time, everything hurts really bad (just unbearable pain all day G.I and joints, it even wakes me up at night) I have to go back to my "safe foods" for a small reduction in pain, I've quit working out (push-ups, yoga, etc.) because my body won't let me. I've lost more weight than the last 2 months combined already (I've gone from 175 under 10% bodyfat to now 120 and I'm 5'8). Is this a normal part of the healing process? Like a "suck month" where my body re-adapts or does this sound different? Anyways thanks for reading my long story which was supposed to be shorter but, I kinda got carried away but w/e. I look forward to being a part of this forum, thanks again.

Regular Member

Date Joined Jan 2008
Total Posts : 491
   Posted 7/24/2009 11:35 AM (GMT -7)   
I wish I had some great answers for you... it's been 2 years & I still don't have a dx, just IBD dx. They say I have lymphocytic colitis. I hope you get someone to care & take care of you.

Trust me... it's not just the young men that docs don't like to give pain meds to, even middle aged women have the same problem!

Anyway, I feel your pain & just wanted to lend a shoulder...
Live for today, for tomorrow you might just get hit by a semi.

Regular Member

Date Joined Jul 2009
Total Posts : 37
   Posted 7/24/2009 12:05 PM (GMT -7)   
Wow I didn't even know there was general IBD that was hard to dx. And yea I know Docs don't just give out pain meds but, it would just blow my mind that my parents would go to the Dr. and just complain about back pain and come home with something ridiculously strong and have to go back to the Dr. and ask for something lighter lol.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/24/2009 1:35 PM (GMT -7)   
Hi AllHailDietmar,

And welcome to Healingwell and thanks for your support on my post. GI's are notorious for not prescribing pain meds. They think that they will slow the bowel down too much. So many us have to go to our family doctors or pain management specialists for our pain meds. So you might want to talk to your family doc about the medication or a referral to a pain clinic. I just don't understand how these doctors can not realize how painful Crohns can be.

If you do not feel you are getting the proper treatment, you can always request a second opinion from another GI. It sounds as if you are really suffering right now, and maybe the time has come to see if another doctor might be more helpful. I look forward to hearing more from you.

Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 7/24/2009 3:34 PM (GMT -7)   
Welcome! As Nanners said that if you don't get results from your present GI, look for another doctor.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Protonix,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Veteran Member

Date Joined Dec 2006
Total Posts : 559
   Posted 7/24/2009 5:10 PM (GMT -7)   
It sucks when a doctor won't give you pain meds. On the other hand, pain meds are just a temporary fix - you need to get real treatment if you want to get better.

While I'm not a doctor (and even if I was I couldn't diagnose you by internet), it sounds like you have an obstruction. Also sounds like your GI is an idiot if he says "you should be in full remission by now" - if only we could simply take a magic drug a be guaranteed full remission. No drug will remove an obstruction.

Once you've got an obstruction (caused by scar tissue inside the intestine) surgery (bowel resection) is generally the next step. Again, I'm not trying to diagnose you by internet - you do need some tests to see if you have an obstruction, and if so, then talk to a surgeon.

Once you've had bowel surgery, it's then usual to start a course of drugs to prevent the obstruction from recurring. Crohn's, as you probably know, cannot be cured, but can be managed with diet and drugs. Finding out which diet and which drugs takes some experimenting, and if you've been reading this forum, you'll see that there are many different approaches. What works for one person doesn't necessarily work for another.

The good news is that you can lead a mostly normal life. But first you need to find a good doctor.

best regards,
Crohn's since 1988
3 resections

Regular Member

Date Joined Jul 2009
Total Posts : 37
   Posted 7/24/2009 8:32 PM (GMT -7)   
I know it amazes me what I've gotten meds for (like shingles which I've gotten 10+ times which is weird as its an auto-immune disease like crohn's) which feels like nothing now compared to crohn's. I know they are afraid that it will slow down the bowels but, sometimes THAT WHAT WE WANT lol. I do have a really good G.I though (I go to a hospital where I get my care for free, if you need this I'll tell you how to get this) and a pain management specialist is probably the next step though (as I've sadly discovered Crohn's is quite painful even out of a flare-up). I'm guessing that everyone here smoked before being dxed (tell me if I'm wrong). I'd also be interested to see how people here feel about medical marijuana, some people I've met online w/ Crohn's swear by it and at the same time gotten off of pain meds (I've stayed off of it to not interfere w/ my other meds just in case).

Wrote this before I lost internet hours ago, I don't think its a bowel obstruction as I'm going normally now as I've changed my diet (from flare-up to post flare-up whatever that means, just ALOT more fiber). My G.I did say that I was in remission and that I shouldn't be in any pain, then again I think he was maybe trying to make me optimistic or something.

Post Edited (AllHailDietmar) : 7/24/2009 9:49:20 PM (GMT-6)

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 7/25/2009 1:36 PM (GMT -7)   
Did you say that at your last treatment you had "feces larger than your lung" show up on x-ray? Did they do something for that?? It sounds a lot like an obstruction if that showed up. I haven't heard anything about medical mariajuana for Crohn's, but someone with more background in pain might have more info.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 7/25/2009 7:43 PM (GMT -7)   
I am sorry you are having such symptoms! And shingles 10 times! I've had shingles twice and it certianly is not fun. It is not an auto-immune disease, rather it is a virus. People with weakened immune systems are more likely to get shingles, assuming of course they have already had chicken pox. This last time the antiviral drug stopped it cold in its tracks! I know others aren't as fortunate. Anyway, I hope you find a good doctor who can set you on the right path!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

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