"This, too, shall pass." or Crohn's and stones.

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Veteran Member

Date Joined Jan 2003
Total Posts : 3169
   Posted 7/24/2009 7:54 PM (GMT -7)   
I promised an update, but it will have to be in bits and pieces, I'm afraid.  First, though, I want to thank all of you for being so patient and not forgetting me during a long absence.  I am reading as many of the posts as I can, but won't be able to answer many for a while.  I still pray for all of you many times a day as I have to interrupt my activities for bath room breaks.  My bathroom is still my prayer room; I hope it helps someone else, but I know it helps me enormously to add some purpose to my days.
I am slower and dumber than usual, as I am taking dilaudid for a kidney stone.  I is my first, and I fervently pray my last, but when that excuse for being out of it wears off, I'll think up another one.  I went to the ER eleven days, got enough dilaudid and phenergan to make me more comfortable, and was sent home with a supply of oral medicines.  I sleep a lot but I can manage.
I had blood in my urine for a week or two and had already scheduled CT scans, which confirmed an 8 mm obstructing stone and a smaller non-obstructing one.  Today I finally saw the urologist; he scheduled outpatient surgery for next Thursday, unless, of course, it passes before then.  He also gave me a seven day supply of Flomax, which he said might help.  It's not just for gentlemen, who knew?  At least I have a deadline now and will have relief one way or another.  I must have known at some point that Crohn's is a risk factor for stones, but I had forgotten that and didn't know that it happens to both genders.
Not related, as far as I know, is a Spigelian hernia, which just happened to show up on the tests.  I may have to deal with that down the road, but first things first.
Meanwhile, I am reading as many posts as I can and will start responding ASAP.  I hope to become a regular again; it will take some juggling but I'll go at my own speed for now.  I have missed you all so much and wanted to post again but didn't know what to say.  I just decided to start with now, and then go backwards if I need to.  My thoughts and prayers are with you all while I "leave no stone unturned." 
Take care. Lois

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 7/24/2009 10:14 PM (GMT -7)   
I have read that a vitamin K deficiency is associated with kidney stones. This is an uncommon deficiency for most people because much of our vitamin K requirement is provided by intestinal bacteria. Crohn's diarrhea can disrupt this supply as well as making it hard to absorb vitamin K from food sources, making this deficiency more likely for Crohn's. You could try asking your urologist about this, but I would not be surprised if he did not know anything about this connection. Vitamin K is also involved in calcium deposition in bone formation, so if you are taking prednisone, it is as necessary as calcium/vitamin D supplementation.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 7/24/2009 10:57 PM (GMT -7)   
(((Eljay))) I haven't had a kidney stone yet but have heard that they're incredibly painful, and don't envy you this experience at all.

I hope that you'll be able to manage the pain, and that Thursday's procedure goes brilliantly.

It's so lovely to have you here again. We've missed you so much.

Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 7/24/2009 11:24 PM (GMT -7)   
Welcome back Eljay!!
I too didnt know that kidneys stones could be had by both genders till joining HW and reading it on here. Sorry you are suffering so much with this and it sounds like your CD is flaring too :(
Keep updating us on how you are going, its good catching up :)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/25/2009 6:24 AM (GMT -7)   

You were missed here and I am so glad to see you back. I hope you and Sukay were able to hook up. I cannot believe how big a stone you have, no wonder you are on dialudid. I have not (*knock on wood*) ever had a stone and pray I never do, but my niece who doesn't have Crohns but does suffer with Diverticulitis seems to throw a stone at least once a month. Poor girl! The biggest she ever had was a 5mm, and I saw what that did to her. So hoping they get this thing taking care of for you soon and it helps you to feel better. By the way, my niece always gets diarrhea when she is having stone problems. Don't be such a stranger, you have been missed.

Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jan 2003
Total Posts : 3169
   Posted 7/25/2009 8:45 AM (GMT -7)   
Thank you so much for welcoming back the "prodigal daughter." Nanners, I did Email Sukay and hope she got it. I told her I'd post here when I could.

By the way, I meant 11 days ago, not that I was in the ER for 11 days, but I guess you figured that out. Sorry, I am fluent in typo.

It's late Saturday morning and I took a phergan but no pain pills yet. Woo hoo. Trying to stay lucid long enough to sort my meds for a week. Oh, how tiny our goals can become, but without them how would we function?

I'm still reading the board and my heart goes out to all of you. Thanks again for being there and for being you.
Take care. Lois

Regular Member

Date Joined Jun 2006
Total Posts : 139
   Posted 7/25/2009 5:42 PM (GMT -7)   
So sorry that you are going through this!!  I have had too many stones and have lost count now.    I took Flomax this past Spring and it actually helped or at least the stone (@5 mm) passed.  Strange drug to be taking as a female and it left me very stuffy- nosed.   Yours is a biggie, but I hope you get some relief still until they can get it out!  Take care!
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