Havent been on in a few days but I am thrilled to see we are on to a part 4 !!! Im just sad we keep having new people joining....well not the people just the fact there are more suffering with the PG.
My leg has been insanely painful the last few days, I am lucky if i slept a total of 4 hours. No pain med touches it , so its just learning to handle it at this point.
Moving to NY kimike? What parts? Western NY is wonderful! You can enjoy the seasons and go to Niagra Falls! Im in NW PA so I am partial to this part of the country!! Fall is soooo beautiful in this area.
I mentioned to my derma, that your wounds were being scraped. He was horrified. He said a little light scrubbing to get any build up off ( that sorta greeny colored stuff) is done to create better cell growth. He seems to think doing the whole things just to be doing it is not helpful in anyway shape or form. My whole calf was debreided in surgery, and its not been done since. He also says he thinks the ocean water cant hurt it- so I asked for him to call insurance to get my beach vacation covered : ) dont think it will work tho LOL
Currently I am using Polymem and its been great with keeping the new skin growth successful. I also had good luck with Hydrofera Blue, until it started staying too moist to help me.
I've taken myself off Imuran in the last month without consulting my gastro. He seems like the type who thinks meds are always the answer. Im having good days and bad just as I was when I was on the Imuran, and the wound came in 2/10 which was the first in a long time. So will wait and see how it continues.
Was gonna post pics, but the tiny url page was down at the moment.
Hugs to all , and hoping everyone is having some form of relief today.
Diagnosed 4 years ago. been a helluva ride since. If there is a side issue to this dd I can find it. I suffer with Pyoderma Gangrosum and horriffic mouth ulcers that get to the point I can't open my jaws. Last one was nice enough to create a fistula and add to my list of fun things to deal with.
Been on all kinds a things, currently on Imuran 150 mgs and it at least give me some confidence in leaving my home.
Allergic to Remicade. Promethius test shows my body fights it. Also suspected to have PBC or PSC autoimmune liver disease.