I need a vent at the moment...

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Regular Member

Date Joined Mar 2006
Total Posts : 24
   Posted 7/27/2009 12:49 PM (GMT -7)   
Okay, I need a vent...
I have been on here for a while, I don't post much, lurk alot and read all the great information that everyone offers. 
Well...here goes...First of all, I am a FAT crohnie...
I know many folks can't keep weight on, but I am the opposite. I can't lose weight. 
Everytime I am predisone which was several times this year ( I was really sick this winter) and now the Entocort (been on for about 4 weeks) makes me eat...but I can't lose weight.
I have Hashimotto's Thyroid thanks to this DD and it has wiped my Thyroid out.  I previously lost 73# which took me about a year and a half to do.  I did it with diet and exercise.
Now I have gained back almost 50# of it thanks to the meds and inacativity.  I have been sicker this year than ever, with respiratory infections, crohn's flares and arthritis flares.  My joints CONSTANTLY hurt.  I seem like I never feel well, I am always aching somewhere and have my bouts with fever, stomach pain, diarrhea, though they consider my crohns mild to moderate.  
My last endoscopy showed Gastroenteritis and a Hiatal Hernia and my Colonoscopy showed inflammation of both the large colon with ulcerations and of what they could see of the small bowel it was inflammed to, so he put me on Entocort for 3 months.  Well I have gained over 15# on it in the short time I have been taking it. 
Most of my pain is higher upper left quadrant and in gallbladder area. I have been thru test after test, my gallbladder is distended, but functioning at 49% so it is okay, and they see no stones.
I am just sick of the constant pain I'm in, I can't take anymore nausea, I get this in the mornings, better now that I think I'm used to the Entocort. I have missed a ton of work trying to get better. I am starting to feel better on the gut areas; but my joints are killing me and I know the extra weight doesn't help at all.
I want to go back to the gym and exercise but I am in so much pain I don't want to hurt myself. So I am on a vicious cycle here. 
I also just found out my mother has 5 tumors in her neck and they biopsied which we go get the results of on Thursday. So I am worried sick about this and add that to my other daily pain and I am a train wreck.   
I am just sick and tired of being sick and tired.
And to add insult to injury..I always get the remark "you have Crohn's?  I thought people with Crohn's were skinny...you aren't skinny...I want to slap them..."  Is that wrong of me? 
NO offense to those of you that battle to put and keep weight on, I am not trying to offend you, I know it is difficult for you too, it is the reverse of what I get.
(I get so ticked that some people don't know about this disease and they make their assumptions on the little they do know, and you want to scream).    
I get hurt when I hear that, because I feel big moon faced, thick necked, ankle swollen blob and I'm a mess, It makes me feel like I'm a freak.  I also feel so alone sometimes in this battle.
Thank you for letting me vent...
  • Crohn's
  • Hasmimotto's thyroid
  • Colitis/ulcerations in large colon
  • Gastroenteritis 
  • Asthma
  • Reactive Arthritis Secondary to Chrohn's, Rheumatoid and Osteoartritis.
  • Anemia
  • Barrett's Esophagus
  • Hiatial Hernia
  • Endometreosis
  • Obesity

Currently: I have been in a flare that is always there, resent tests show stomach, small & large intestines have inflammation.  My arthritis is flared and won't go into remission. Constant joint pain and bouts of nausea, abdominal pain and cramping...Pleazzz go into remission!

Meds; ~ Pentasa, Entocort, Phenergan, Aciphex, Levoxin, Vicodin for pain, Singulair, Proventil, Levbid, Valium for anxiety, depression, stress.

Vitamins; Ferrous Sulphate, Folic Acid, Calcium with D, Cinnamon, Biotin (for hair loss), B-12 injections monthly, Flax seed oil, Vitamin E.

Crohn's Disease ~ "The Disease that Keeps on Giving and Giving!"


Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 7/27/2009 1:42 PM (GMT -7)   
Honey, you are not alone. I weigh 285 lbs, and I am a former military officer so needless to say I actually love to workout and have definately found that pain and injury are so much more at this weight.  No, you are not wrong in wanting to smack them. I do too. Very few actually understand what it means to be a fat crohnie. People do not seem to understand that you can still have very severe disease, even doctors, so I have to ask had you have a pill camera done?   To explore the 18 feet of intestine that cannot be seen on regular scopes. 
I cannot tell you how much I empathize with wondering about Mom's tumors, but I hope you have good news on Thurs.

Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 7/27/2009 2:51:32 PM (GMT-6)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/27/2009 1:49 PM (GMT -7)   
AnastasiaB, I am so sorry to hear you are feeling so bad. I can relate and just posted a venting post myself just last week. Feel free to vent all you like, thats just what this forum is for, sharing with others who truly understand.

We have had many posts on this forum about Crohnies like you that have problems loosing weight. I myself have always being a thin Crohnie, but now that I am in remission I have put on some weight, but for me its considered safe weight in case I get sick. I think between your Crohns, crohns meds and your Thyroid you really will have a harder time loosing the weight. Hopefully someone who has tips to loose the weight will be along soon. But I just want you to know you are not alone.

Will keep your Mom in my prayers and hope her tests results come out good.

On a adminstrative note, could you please modify your signature. We have a 10 line limit for signatures to save on bandwidth. You can go into control panel, and edit your profile there.

Big Hugs,
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 7/27/2009 2:19 PM (GMT -7)   
When I went on the SCD plan, I lost weight. I was not very overweight, but I have lost about 20 pounds and am now approaching skinny. I don't know how well it would work when you have a thyroid problem as well, but maybe??? It might even help your Crohn's. My prayers for your mom.

New Member

Date Joined Jul 2009
Total Posts : 3
   Posted 7/27/2009 2:49 PM (GMT -7)   
First, prayers for you and mom both.  That's the most important thing I can do for you personally.
I have often wondered about crohn's and weight issues. I've known people both overly big and overly small. Myself.......I spent years as extremely skinny. I am 6 foot 1 and weighed about 150 pounds soaking wet. After diagnosis and medication, food didn't make me sick for the first time I can remember. I jumped all the way up to 215 in the last 2 years. That doesn't concern me that much. I told my dr. it was "insurance" when he mentioned that I should drop about ten pounds. What concerns me a little bit is what if I continue to expand at this rate?
Feel better soon!!!


Regular Member

Date Joined Mar 2006
Total Posts : 24
   Posted 7/31/2009 12:47 PM (GMT -7)   
First, HUGZZ and Kisses to all of you for all your prayers, kind words and good wishes.

Mom got her results yesterday, and we got GREAT news...the tumors are benign! I am so thrilled words cannot express how I feel, as I was scared out of my mind. Both her and I have not slept and have been constantly worrying about the results since her MRI and biopsy.

I thought I was going to pass out waiting for the doctor to come in. I was trying to remain strong for her, but I realize I am not as strong as I used to be.
I lost my father to colon cancer June of 2000
(we believe he had crohn's and was never dx'd or treated.) I had to do all the arranging and it about did me in.

Well my Mom is 78 and was already planning for the worse, which didn't help. She keep saying "I don't want to be a burden to you, and if I got cancer, so be it I accept it. She also feels that she is being a burden and making me sick due to the stress of all this. I can't get thru to her that she could never be a burdon, she is my world.

Well, anyways, She will be having surgery in Sept, it is going to be a long one, 3 hours and it comes with risks also. But I am going to remain positive and we will get thru this together.

I realize I have to remain positive and try to get rid of the stresses in my life. I also need to work on my physical well being. The Entocort is not working, with the exception of making my scale climb and the nausea. So I am done with this. My doctor found that I can't take Phenergan for nausea as I am having adverse drug reactions, so that is out.

So it is one day at a time, if I get off these meds and work on my mental and physical well being, perhaps I can lower my GVW's... ;0) Wish me luck!

Again, thank you for your prayers...they were answered now one more hurdle with mom and take a deep breath...

PS...Nanners...I made my signature thingy shorter. ;0)

HUGZZ and KISSES to all of you!!!

Crohn's, Hasmimotto's thyroid, Colitis/ulcerations in lg colon, Gastroenteritis, Asthma, Reactive Arthritis Secondary to Chrohn's, RA Osteoartritis, Anemia, Barrett's Esophagus, Hiatial Hernia, Endometreosis, Obesity. A remission pleazzz!

Meds; ~ Pentasa, Entocort, Phenergan, Aciphex, Levoxin, Vicodin for pain, Singulair, Proventil, Levbid, Valium for anxiety, depression, stress.

"The Disease that Keeps on Giving and Giving!"


Regular Member

Date Joined Jun 2009
Total Posts : 202
   Posted 8/3/2009 1:43 PM (GMT -7)   

One of the first thing my husband noticed at my crohns support group was that none of us "looked sick".  We weren't thin and sickly looking like most people would expect.  The only gal who was skinny was one who only has 4-feet of bowel left.  Side effects from drugs suck big time.  We have that going against us big time.  I'm sorry that your feeling bad about your own situation.  It sounds to me, however, that you are doing what you can and that's all that matters.  I have no doubt you're a beautiful person inside and out.  :)

Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum.  Currently have C-Diff.
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Flagyl 250mg, 3xday, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone & Entocort

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