Posted 12/3/2009 7:39 AM (GMT -8)
Hiya blue! I have tried everything under the sun for my crohn's and to no avail. Just left with doing the trials-lucky me. The perks are I might just happen upon something that actually helps. So my GI Doc wants me to try one of two trials: (door number one) Vedolizumab or (door number two) Ustekinumab. Hmmmmm...I've been hitting up sites and trying to find any forums on both these meds. Both have ups and downs(go figure, right?!) The V is way more intense than the U, although I'm pretty sure its because of the "first testing on humans factor".
And really, to be honest to only reason I'm contemplating either one of these is not just the intestinal issues from crohn's but the joint pain I get with the flares- its kicking my butt! If you decide to try it, keep me posted ok? It would be at least comforting to know I'm not walking down this dark alley alone. Thanks!