naltrexone for fistulas?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Oct 2007
Total Posts : 13
   Posted 8/2/2009 2:19 PM (GMT -7)   
I have had another post about my son here yesterday and today and one kind poster replied with mention of naltrexone.  I had never heard of this so researched it a bit and am hoping this could be a possibility for my 14 yr old son as we are facing him beginning Remicade this week.  Has anyone else had their fistula heal with naltrexone?

Regular Member

Date Joined Feb 2008
Total Posts : 25
   Posted 8/6/2009 3:56 PM (GMT -7)   
I have a 3 year old son with severe Crohn's, they think. We are at the point that the only thing that stops the severe bleeding is Prednisolone. The next drug to try for us through our regular docs is Remicade.

We made the decision to try LDN (Low Dose Naltrexone) before doing remicade and will be starting it next week. My son does not have any fistulas and it is my understanding that LDN isn't an immediate knock out the inflammation like Remicade or Pred. It is something that some people seem to have benefited from, when included with a strict diet, getting your Vit, D levels up and eradicating any Candida problems. We are desperate to find something that helps us get my sons inflammation in check that is not an immunosuppresant, especially a bliologic.

He has been on Pred for almost a year now and we have just quit taking Imuran. Over the course of his immune system being suppressed he has gotten Aermonas Hydrophillia - a flesh eating bacteria, and C. Diff. We have decided to commit all the time and resources necessary (including food prep) to try to give LDN a good chance. It is my understanding that it takes that kind of time commitment and patience if it works at all. For us we need to at least try to get off of the Immune-suppressing roller coaster at his young age.

I will update these boards with our story as we try LDN for all those out there who are interested. Look into possibly getting a vitamin d test for your son, something our research university docs never did, and getting experienced with a diet like the SCD diet. Diet is one thing we can control.
Father to 2 year old son diagnosed with acute Crohn's.
Imuran (40mg's a day), 6mg Prednisolone, GAPS diet, Mutaflor, Bio-Kult probiotic, Yes parent oil, about to start LDN
Always flares when we dip below 5mg Pred. Just got over C. Diff (we hope).

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, November 19, 2017 5:22 AM (GMT -7)
There are a total of 2,895,304 posts in 317,783 threads.
View Active Threads

Who's Online
This forum has 157387 registered members. Please welcome our newest member, ahmedkamel5000.
223 Guest(s), 2 Registered Member(s) are currently online.  Details
Wilderness, straydog

About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow on Facebook Follow on Twitter Follow on Pinterest
©1996-2017 LLC  All Rights Reserved.