Does anyone else with crohn's always feel anxious............and just sure that you are dieing!

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New Member

Date Joined Aug 2009
Total Posts : 4
   Posted 8/3/2009 6:51 PM (GMT -7)   
Ok so I was diagnosed with crohn's disease about two years ago and it has been a role coaster ride!! My question is do any of you feel anxious the way I do, or am I just crazy! I drive myself and my husband crazy because I am just sure that I am dieing and that the doctors don't know what they are talking about!! Ok so I might be crazy, please just let me know if you are too!!

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 8/3/2009 9:41 PM (GMT -7)   
Anxiety can be a result of the meds you are on... Do you take prednisone? It is not impossible that just being chronically ill might make you anxious. You could get something to help with that. I almost wrote - " No you are not dieing and yes the doctors don't know what they are talking about." But I am just annoyed about the doctors' cookie cutter approach. BTW - welcome to Healingwell!

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 8/4/2009 4:05 AM (GMT -7)   
Welcome Happymommy!

I agree with Keeper. Certain medications can really mess with your head. What are you taking? Also, a typical result of experiencing a health crisis is to think about mortality. This is where are beliefs are tested.

Take care.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

D&G's Mommy
Regular Member

Date Joined Jan 2005
Total Posts : 185
   Posted 8/4/2009 4:19 AM (GMT -7)   
Hi Happymommy,

I have had this disease since I was 17 and am now 45. My anxiety has slowly increased as the years have rolled by. Now that I have kids I am convinced I am dying every time something new comes up and I think the doctors just lump everything under the "crohn's" umbrella. I think it just comes as part of the package and some people are just more prone to it than others. I do have a prescription for Xanax that I take when things start to whirl too far out of control. I also am trying to get back into meditation and yoga as well as my walking as often as possible to cope with some of the stress and anxiety. Hang in there. You are not crazy. You are very normal dealing with a really crappy situation.
Mommy to a 5 and 6-year-old
Currently on Humira, questran from time to time.
Using acupuncture.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/4/2009 6:38 AM (GMT -7)   
I have had Crohns for over 33 years and about 2 years ago I developed really bad anxiety related to the Crohns.  I was always worrying about the what if's.  This is called anticipatory anxiety.  Thru therapy and with the help of an occasional Xanax I am now able to stop the anxiety in its tracks.  Hope that helps.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed for my anxiety.  Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Jun 2009
Total Posts : 202
   Posted 8/4/2009 10:48 AM (GMT -7)   
I was really anxious at first.  But then as I continued to educate myself, it has gotten better.  A good GI doc also helps which I have.  My only concern is the increased risk of colon cancer.  I've always dreaded the thought of getting cancer - anywhere.  My mother-in-law died of colon cancer 4-yrs ago.  I recognized the signs and symptoms before she did only because of my accute awareness of my own colon.  I just figure that I have to do my part to stay involved in my healthcare - I need to be pro-active if you will - and by doing so, I'll have a good chance of living as long as anybody else does.

Crohn's Disease. 
Diagnosed 13+ years ago. 
Been in remission for short periods of time but each time I come out of remission my disease seems to have spread.  No longer isolated in my ileum, now from stomach down to rectum. 
Current Medications for the Crohns:  Humera 40mg injections every other week, Imuran 150mg, 3xday, Hyomax, Welchol 625mg, Flagyl 250mg, 3xday, Calcium, Acidophilus & Potassium
Previous Medications I've been on:  Asocal, Pentasa, Cipro, Prednisone & Entocort

New Member

Date Joined Aug 2009
Total Posts : 4
   Posted 8/5/2009 4:52 PM (GMT -7)   
Thank you all so much!! It helps to know that people experience the same kind of anxiety! I really am trying to calm down and relax, it has helped a little but maybe I do need something to help with my crazy head! Thanks again! O yeah I was taking prednisone but know i am just on pentasa and entocort

Veteran Member

Date Joined May 2009
Total Posts : 506
   Posted 8/5/2009 5:21 PM (GMT -7)   
I have gone through periods of letting CD get the best of me. I'm a big believer in not worrying about something I have little control over, so I try and just wait it out and hope I feel better soon. Adding more stress to my life is something I sure don't need need.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

New Member

Date Joined Aug 2009
Total Posts : 1
   Posted 8/5/2009 5:45 PM (GMT -7)   

Have you ever heard of "The Makers Diet"?  I Highly recommend it to everyone with crohns disease.  My son was diagnosed with CD and he has come off of ALL medications and we are following this diet and using the correct supplements. What I learned is that every medication that is prescribed for CD only addresses the "symptoms"  but never cures the actual problem.   Please look into this book, it will change your life.  by Jordan Rubin: the makers diet

Regular Member

Date Joined Mar 2006
Total Posts : 42
   Posted 8/5/2009 6:15 PM (GMT -7)   
talk therapy and MMJ, both priceless IMO for dealing with the totally justifiable anxiety of this disease.
Crohn's for 27 years, since I was 8
5 surgeries so far, i have tried almost every treatment there is. My core recommendations to live with Crohn's are: get Remicade/Humira/Cimzia if you can, get abdominal massage regularly, and learn to make healthy and easily digestible protein shakes for yourself.

Regular Member

Date Joined Mar 2008
Total Posts : 134
   Posted 8/5/2009 8:35 PM (GMT -7)   
I find myself getting anxious about getting cancer--I have crohns and also autoimmune hepatitis, so I am on strong immunosuppressants!!  Which increase the cancer risk.  I need YEARLY colonoscopies.......and I have had a high grade dysplastic lesion in my colon.  I'm always nervous about getting a bad infection (swine flu,, anyone??)  I function, but all of this is constantly in the background---low grade, constant anxiety.
So join the club

New Member

Date Joined Aug 2009
Total Posts : 4
   Posted 8/5/2009 10:07 PM (GMT -7)   
Ok yeah that is my main concern CANCER!! I hate it! I have two kids and I am really young an I don't want to die from cancer and I am afraid that is what my crohn's is going to turn into!

Veteran Member

Date Joined Jan 2009
Total Posts : 832
   Posted 8/6/2009 2:43 AM (GMT -7)   
I have this to its called anxiety disorder and there are good meds for it ;)

I was so bad that I could not be home alone, I could not drive alone and I could not go to places where there was no hospital or the weather was so bad that the rescue helicopter would not be able to fly.
If I had to go somewhere I planed my way so I would always drive near a hospital and if I had to be home alone I would sit out side with the phone in my hand and wait for people to come home. I was always in a good place so someone could rescue me if I would die.

Well today I am normal :) so there is hope for the loony people out there ;)
It takes a lot of work and I take 10 mg of Cipralex a day it helps a lot.

I also bought this book and it helped so much

Panic Attacks Workbook: A Guided Program for Beating the Panic Trick

Good luck your are not the only one..
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009

Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ ~

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 8/6/2009 6:18 PM (GMT -7)   
I do but not all the time. Just sometimes I am so nervous and anxious that I wish someone would knock me out until it's over. You are not alone in this!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics prescribed by my GI.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

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