Oh elexis :-( Im so sorry and you have truly inspire me to keep my head up because you have it so tough. I believe that everything happens for a reason and that includes my disease. When I went into remission the air felt cleaner, the birds sounded sweeter and the sun in winter that bit warmer and one day you will be there to appreciate it. For now you may not feel so motivated and I don't blame you but you probably don't realise what a special gift your teaching your son everyday being strong, fighting the disease, being a parent and everything else that comes with it.
Kids today are spoilt, there is so much sex drugs and rock n roll and its scary but what I believe we (crohnies) teach all our children is that your body is a temple and when we struggle day to day with pain and suffering against our will striving for 'maybe that couple of months break' That might be the thing that deters them one day from taking drugs, drinking & smoking etc and that we never give up...maybe sometimes for a day or 2 for a sulk but that's okay because we go right back to fighting again.
I would not be the person I am today without this disease and i'm glad that my son can inspire to live a wholesome and grateful life knowing not to sweat the small stuff and never to give up...I know it's hard when you cant play with them but try be proud of what you can do with them because they love you regardless
and if you have inspired me in one post imagine what your loved ones think about
you...your tough!!!! (with a gooey sweet filling of course)
Tina 26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 125mg Motillium for digestion used in the past Remcide, salofalc, pred.
Worst pain equal to child labor was after eating home made Granola...i can still hear the screams ha ha.