I am off all medication, I had crohn's colitis which means my disease was contained to the rectum and the large intestine. Once that was removed I have a a slim chance of having it reoccur since I have no history of Crohn's disease in my small intestine. This is what I was told by my doctors Dr. Kane of the Mayo Clinic (once worked at the University of Chicago) and Dr. Rubin who is my current doctor at University of Chicago. I have also seen Dr. Stephen Hanuaer speak on this topic at the annual CCFA event in Chicago and he too says with Crohn's colitis there is a small chance of it gong to my small bowel. So in my case it is not odd, it is standard practice with Crohn's colitis.
Below is a conclusion written by Dr. Alessandro Fichera a surgeon who works with Dr. Rubin:
CONCLUSIONS: A more aggressive approach should be considered in patients with diffuse and distal Crohn's colitis. Total proctocolectomy in the properly selected patients is associated with low morbidity, lower risk of recurrence, and longer time to recurrence. Patients after total proctocolectomy are more likely to be weaned off all Crohn's-related medications. Long-term rate of permanent fecal diversion is significantly higher in patients with distal disease. http://www.mdconsult.com/das/citation/body/153448154-2/jorg=journal&source=MI&sp=15565284&sid=0/N/15565284/1.html?issn=
Stricturoplasty and resection surgery are a totally different things and after surgery it is common practice to stay on medications because you want to keep people remission after surgery because the chance of recurrence it extremely high. The the recurrence comes back to the same place. Base on what Crohnie_Mel describes it sounds like he has Crohn's colitis. I also participate in a support group where 4 new members have had total colectomies this year ranging in the ages between 26-42 all are off all medications because they had Crohn's colitis.
Crohn's disease, currently no medications, 2 surgeries, ostomy since 2004
Post Edited (Marlowe) : 8/10/2009 4:57:23 PM (GMT-6)