Well i was coming off pred... again was down to 5mg daily and my symptons have been gradually returning over the last week. I have run out of my usual pain meds and had been surviving on OTC stuff which really didnt touch the sides. I was afraid this would happen as this is the second time this has happened since i was diagnosed in Febuary and ive only had a few good weeks since ( high pred dose and pain relief is all good ). I was advised after my last appointment to raise my dose back up if this happens which i have have now done (up to 20mg) and already feel more alive and actually ate something today for the first time in three days! I visited my GP and topped up my steroid tabs so i have enough to taper off and i have some more pain meds now so im back to where i need to be ( albeit temporarily). Just need to contact my nurse which is proving a tiny bit tricky at the mo to see about the possible change to humira as its not looking like the azacol is doing the trick :(.
Thing is im due to hit Newquay for a stag weekend on friday and kind of worried about being a damp squib or having a rough time and being stuck away from my own bed curled up in a dingy hotel room all weekend cause i cant bear to go out (we aint booked five star its a stag do lol) Im also due to go to V festival next weekend also, although i think i can regulate what i get up to there a lot easier due to the fact the whole weekend wont be centered on getting absolutely leathered and rolling in and out of nightclubs.
Im in two minds what to do, ive only just got back on my feet so to speak and am concerned wether i can hack a weekend away with all my my mates.Im usually always up for this and usually organise all these jollies but for the first time in my life im having second thoughts and have to think hard about committing to stuff. A few of them know im having a rough time time and may pull out but i seriously dont want to let anyone down and lose the fun loving -up for -anything attitude ive always had for things when actually at the moment i think i can make it through.
Do you think i can carry this through with the pred dose the same and some pain relief as back up? seems a yes to me but i was kinda hoping you lovely people could shed some light on how you think i might get on or how you deal with/have dealt with these situations.
Any feedback would really help........