I'm new to this support group. Actually this is the first time I have ever joined a support group for crohn's disease. I have a whole bunch of symptoms I don't really understand. And, I was wondering if it was normal what I'm going through. So, if you have any advice, solutions, or if you have felt the same please respond, it would be greatly appreciated.
sharts - (sh** /fart)
unable to hold bowel movements
weight gain (especially after a flare up)
No defication of fat, just A LOT of BLOOD and mucus
inconsistant bowel movements... including texture/ times per day/ and the blood ( color variations and thickness in clots , but always a large amount of blood loss)
different types of pain from nausea, to sharp stabbing pain
sensitive to heat
Random hot spots on body
core is always hot
food tastes weird. (for ex: Fruit tastes insanely bitter or sweet)
* the cycle is pretty much ... sharp pain- bathroom-bloating pain- burning pain- eat- sharp pain again- bathroom.
Also, these sympotms are in corollation with allergies that I have but no one can find.
I'm throwing false positives and negatives on tests. But whenever I get a flare up my allergy symptoms are worse. To the point I can't go outside cause my skin hurts so bad. It's scarey cause I went into anapholaxus shock three times and no one knows why. But, its when the bleeding was really bad.
I'm on asacol 400mg two tablets three times a day, 10mg of prednisone three times in the morning, 20mg omeprazole once a day, and ferrosquels once a day.
I was passing full pills of asacol each bowel movement the doc said its normal but I would like a second opinion.
And, I would love to hear of a good nutritionist. Bewteen these symptoms I don't know what to eat.
For example:Something might be great for my anemia or acid burning feeling but terrible for my bowels. And, vice versa.
I'm a vegetarian and dairy is hard for me to intake after away. I always had a problem with texture in food.
If you know any info that can help. Books, doctors, nutritionist in the bklyn, NY area . PLEASE HELP!
I'm so lost I don't even know if there is an underlying illness cause the crohn's. I'm definately interested in a second opinion.