Tips for Talking to my lecturers

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Veteran Member

Date Joined Apr 2006
Total Posts : 634
   Posted 8/14/2009 7:01 AM (GMT -7)   
Hi all,

Hope everyone is well (or as well as you can be!). In my last post i explained how i was trying to enrol early cos i had infliximab booked for the same day. Well good news, i am now enrolling on monday the 14th of september! Now i have an appointment with my course tutor in her office to fill in the oceans of paperwork!

This is one of my first opportunities to actually have my tutor to my self and be able to actually speak and explain things to her. My uni sucks at communication. I've had little to no support and what i have gotten, i've had to nag and nag to get. Like i had a semester off (starting infliximab) and each week i had to email my tutor to remind her to mail the notes to me. She could easily have gotten them all together in one box and sent them together, but course that was too easy!! rolleyes

I have sent each lecturer information on crohn's, and they have seen me shrink to 8st 13lbs from 10st. They know what this does to me and yet i still get the feeling they dont understand. I came back from starting infliximab and one of my lecturers looked me dea in the eye stating 'my disease was sorted out now cos i had new treatment'. I 'm not even sure she knew i have to keep going back for more doses.

This could be my chance to make my tutor really understand what my life is like. How do i go about explaining this (again) and getting her to understand that i shouldnt have to email the lecturer every time i miss a lecture. How do i go about this? I do get the feeling they think i'm too sick to be there (one lecturer actually said she heard my tutor state i shouldnt be there, i should come back when i'm better) and i'm using crohn's as an excuse.

Sometimes i wish i could give them all this disease for one day. Just one day and see how they would cope, i know their attitudes would soon change.

Sorry this has turned into abit of a mopey post, for that i'm sorry. I'm swimming through assignments that i should be handing in on monday that arent finished yet. As usual its down to the wire!

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 8/14/2009 4:44 PM (GMT -7)   
You might start by telling her that CD is chronic and the few drugs that they use to treat it cause dangerous side effects like lymphoma, but the chance of lupus, RA, lymphoma, or other unrelated autoimmune disease is a risk that the chance of treating the symptoms of Crohn's makes worthwhile, because Crohn's is just so debilitating by itself. You might then tell her that antibodies can form against the infliximab, so it can stop working at any time. You should then say that because the treatment is new to you, you don't know how much improvement you can expect since it takes a few months for the maximum effect to be felt. You should also stress your commitment to the course program and the potential for a longer term remission as a result of taking the infliximab. Just make sure that she knows that you have no guarantee of "health" and there can be good days as well as bad. I am a bit mad that she can get away with saying that you are ill, so you should not be there. Is there no disabled access provisions there?

Veteran Member

Date Joined Apr 2006
Total Posts : 634
   Posted 8/15/2009 5:28 AM (GMT -7)   
They are meant to provide disabled access but if you have anything hidden ie crohn's then you may as well whistle for support. If i were blind or missing a limb i'd be helped! So annoying. One lecturer said to my face that i wouldnt pass my second year cos i'd missed so much, even though i was studying from home. Needless to say i threw myself into my work and passed 3 out of 5 exams. I'm still having to work over summer and i'll be redoing some modules next year as well but considering i missed 10 out of 12 weeks of lectures i'm really pleased.

I'll try to point out everything you said, whilst attempting to keep my temper! I get cross when they lie and sweep things under the carpet. Maybe i should print out more information and possibly get a letter from my GI explaining things. Kinda like a 'dummies guide to crohn's'

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 8/15/2009 4:49 PM (GMT -7)   
Yes! You neeed official literature, and a doctor's letter, to back you up. Give yourself as much cred. as you can.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

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