If you have doubts absolutely get a second opinion. I had a diagnoses reversed by a second opinion.
I was diagnosed with Crohns in February after right lower quadrant pain. The doctors thought I had appendicitis and sent me for a CT. No problems with appendix but CT showed narrowing in TI and radiologist suggested CD. GI performed a colonoscopy, endoscopy, and small bowl fallow thru. I had several lesions and inflammation both visible and in biopsy. GI said although labs where negative and biopsy were not 100% conclusive he was pretty sure it was Crohns.
I started Flaygl, prednisone, and pentansa. 3 months later I had no perceived improvement and in fact felt much worse; more pain, more problems with bowel movements, and side effects from all the meds. So I was then referred to a Crohn’s specialist at UNC. He questioned the diagnoses and repeated the colonoscopy and a camera-pill small bowl fallow thru. Results showed no signs of active disease visually or with biopsy.
The crohn’s specialist believed I had NSIADs induced IBD/IBS and now I’m being treated for IBS only. I had been taking neproxin for back pain in January which he believed caused my problems. He thinks eventually the IBS will go away completely as long as I stay away from NSAIDs. My current pain is very similar to what it has always been…lower right and left mid. Additionally, I do have all the classic signs of IBS from time to time.
Obviously, I like this diagnoses better and I’m hopeful that it is accurate but I’m afraid that maybe I have more than IBS. I have never heard of NSAIDs induced IBD/IBS, despite knowing the fact that NSAIDs cause problems, especially for people with CD. I worry that maybe I have CD and it is just in remission after the 3 months of pred & pentansa. Maybe I just have IBS in addition to CD. Both are a possibility but my GI (crohns specialist) is pretty confident I don’t have CD. I guess time will tell. Good luck and please post results!!