Crohns and Social Security Disability

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Regular Member

Date Joined Sep 2008
Total Posts : 41
   Posted 8/25/2009 6:06 AM (GMT -7)   
Has anyone out there been through the process of applying for SS disability for crohns disease?? I am just beginning to think about trying for disability but know nothing about it yet. Any suggestions or experiences?? Thanks
Jen G

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 8/25/2009 6:41 AM (GMT -7)   
when you fill out the paper work very carefully describe what you CANNOT do because of the crohn's. Don't just say how bad you feel - they don't give a crap. They want to know how the disease keeps you from working. So, you have to quantify it. For example - "The side effects from X-medicine gives me tremors and I am unable to hold a pen to sign my name, use a knife to cut food, and drive my car." OR, "Because I suffer with explosive diarrhea I am unable to leave my home and must have immediate access to a bathroom." OR "I am so weak from being unable to eat that I cannot stand for longer than 5 minutes at a time."

Only say what is true, but those are some examples of how to show what you CAN'T do. They don't really care if you can't do your current profession. They want to see if you are unable to do any kind of work at all, even a sit at home phone-job.

It is also imperative to have your doctor back you up. They will want all your GI record. I also asked my doctor to write a letter for me saying how bad it was. I even gave her a draft of a letter to give her an idea of what I was looking for. She wrote one for me. I also had aletter from my employer saying that the time I had missed from being out (I was a teacher) was jeopardizing my continuing employment.

You need all the documentation you can get. The more complete your info and the more you can back it up, the better off you will be. Good luck!

Ne Ne
Regular Member

Date Joined Apr 2008
Total Posts : 243
   Posted 8/25/2009 6:48 AM (GMT -7)   
I just got my SS disability. It took me 3 years my one comment is if you start it stay with it because they have to pay the back pay from when you start it. I had to get a lawyer but I got three years of back pay and I got medicare its a fight so be ready.

Dawn turn yeah
49 Female
Dx June 07 Crohn's take asacol 2x3 a day ,lotrel for HBP , omeprezole for stomach , potassium , calcium & Vit D , lomotil for lose stools , tramadol for pain , started humira in Feb 08 on 1 shot a week, vit-B 12 shots , crestor,off crestor,now pravastatin, pristiq, abilify,
Dx Bipolar May 08

Regular Member

Date Joined Jan 2003
Total Posts : 224
   Posted 8/25/2009 6:52 AM (GMT -7)   
I am glad someone else posted this. I am curious to see the replies. I am beginning my crusade into the process of applying also. I do know so far that, like stef17 said, you need EVERYTHING you have, to prove that you are disabled. I also learned that SSI and Disability are two seperate things. Its so confusing.....I have only just begun and I am tired of the confusion. Good Luck to you!

 "The Lord wont give me more than I can handle,i just wish he didnt trust me so much!"
  "let people be people before they are patients"

Regular Member

Date Joined Feb 2005
Total Posts : 455
   Posted 8/25/2009 11:23 AM (GMT -7)   
every week there is a thread posted on this exact topic. Do a search, you will find tons of answers :)
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.

Veteran Member

Date Joined Aug 2003
Total Posts : 1017
   Posted 8/25/2009 11:49 AM (GMT -7)   
Remember that their job is to say no and you must be very clear on what you cannot do, not what you can do. If you cannot take care of yourself you cannot be home with a child, and they will even ask about your household chores and what you can and cannot do. Be very clear that because of X problem I cannot stand for more than x amount of time. The hardest part is actually admitting to someone else who does not give a crap about you just how bad off you are. It is a real emotional journey. My husband is at 18 months for his issues and we just had the first hearing. The lawyer said we are already set up for appeal. The lawyer was the one that said the judges job was to find any reason to say no and that there are no deadlines, they can take as long as they want.
Red (Lee Ann)
    "No passion so effectually robs the mind of all its powers of acting and reasoning as fear." - Edmund Burke

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