blood work after one month on LDN

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njmom
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Date Joined Apr 2006
Total Posts : 1885
   Posted 8/25/2009 4:21 PM (GMT -7)   
My daughter's bloodwork showed a sed rate of 3 - in the past ten labs, since mid-2006, it has never been below 8.
 
CRP was 1.25 - tends to range between below .6-2.0 unless she has a virus or bacterial infection. 
 
Everything else normal, except low ferritin and vitamin D which, in her case, are always low. 
 
The main take-aways seem to be:
 
a) the LDN is not doing harm
b) the unusually low (for her) sed rate indicates it might be doing good
 
Since she never has D or pain, which are held in check by Entocort, we have to go by labs, SBFTs, and colonoscopies to see whether something is working.  Also, she took a "leaky gut" test (Genova Labs) efore starting the LDN and the test did show a "leaky gut," otherwise known as intestinal permeability due to inflammation. So, theoretically, if the LDN works, then the test should be negative for intestinal permeability.
 
So the plan is: a) blood work and "leaky gut" test after 8th week on LDN and b) depending upon what the tests say, decide whether to try to taper off Entocort. 
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